Selma is a 10-year-old girl who has been diagnosed with Rett Syndrome. She lives with her mother and father and two siblings aged 13 and 7.
The family has added a fine extension onto the house so that Selma has her own bathroom adjacent to her room and a living room where there is ample space for the Innowalk and other aids that are in daily use. The building has been adapted to Selma’s needs as a child, at the same time as it also includes some smart solutions that will allow it to be easily converted into a self-catering apartment for Selma when she is older. Everything has been carefully considered – from lighting, to windows that go all the way down to the floor so that Selma can lay on her stomach on the floor and look straight into the garden. There are also soundproofed doors between the bedroom and the living room.
Selma likes to be in the Innowalk and uses it about 4 days a week. On two of those days, her assistant Martine is normally the one who helps her with her training. Her mom explains that she sees it as important that Selma gets varied stimuli and activity. She goes in the pool once a week and on top of that she has some riding therapy. She really likes the horse and her balance when sitting is good thanks to the horse-back riding.
Selma was as young as 2 years old when she was introduced to the Innowalk by the children’s habilitation service. She trained being in standing with support and at the same time it was desirable to stimulate more standing with motion to explore the possibility of any perambulatory function. Selma has thoroughly enjoyed the activity available to her by the Innowalk for 8 years. Mom says that it gives them a clear conscience knowing that Selma is able to move in the Innowalk, and it is easy to undertake such an activity on a weekday when it’s “all systems go” for a family of five, with activities and homework, that need to be carried out in the afternoons.
The parents’ motivation for all the activity and training that Selma has, is that she should be able to master as much as possible herself, as well as maintain the functionality she already has. She stands well with support and sits independently. With the support of an adult, she is able to walk over short distances. All of these are important functions that are actively employed in everyday life, such as while dressing and moving between different rooms in the house. There are also an indication that bodily activity is important for basic functions such as respiration, digestion and overall quality of life. Through continuous activity, deformities and contractures are also prevented.
When Selma was small she got quite sick and had an extended stay in hospital. And she ended up with constipation.
So, we took her home once a day to go in the Innowalk. That did the trick and got her stomach up and running again.
– SELMA´S MOM