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Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
","post_body":"Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\nIn this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \nLooking after mental health \nIf you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\nMental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\nOn top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\nUnfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\nThat’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\nGenerally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\nCommon symptoms of mental health issues \nThe symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\nHere are some common signs to look out for:
\nEmotional signs \n \nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
","rss_summary":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
","rss_body":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
","postBodyRss":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
","postEmailContent":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
","postRssSummaryFeaturedImage":"https://2252381.fs1.hubspotusercontent-na1.net/hubfs/2252381/Blog/Featured%20image%20-%20Use%20this/FI_CP%20Depression.jpg","postSummary":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
","postSummaryRss":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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27-Aug-2025 Cerebral Palsy and Mental Health
Mental health in cerebral palsy is often overlooked. Spotting signs early can improve wellbeing and quality of life.
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Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","post_body":"Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\nIn this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity \nWhat is fatigue? \nFatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\nMost research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\nWhat are the signs of fatigue? \nSings of fatigue can differ among individuals, but some typical signs include:
\n \nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
","rss_summary":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","rss_body":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
","postBodyRss":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
","postEmailContent":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","postFeaturedImageIfEnabled":"https://2252381.fs1.hubspotusercontent-na1.net/hubfs/2252381/Blog/Featured%20image%20-%20Use%20this/FI_Fatique%20CP.jpg","postListContent":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","postSummaryRss":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
","rssSummary":"
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13-Jun-2025 Cerebral palsy and fatigue: Causes, signs, and strategies
Fatigue is a common but overlooked symptom in cerebral palsy. Learn what causes it and how to manage it for better energy and daily function.
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\nThe original study was funded by the Association of Paediatric Chartered Physiotherapists (APCP) , in 2022. This study observed ten children, aged four to eighteen, with complex disabilities using the Innowalk PRO at a special school in Wales. The study aimed to gather evidence of the participants ’ well-being when using the Innowalk Pro to increase their physical activity levels. The three observations of each participant were mapped onto a new well-being scale (WEBS). The domains of this well-being scale include calmness, comfort, creativity, energy, engagement, and joy. This research utilised the Innowalk Pro to observe well-being indicators in the children’s responses through a case study design. Ten cases were made up from observational field notes, diaries and interviews with children and their parents. Three themes were identified:
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\nparticipation: anticipation and tolerance \n \n
\nphysical effects: improved self-regulation of sleep, bowel and muscle tone \n \n
Overall, the Well-being (WEBS) study demonstrated that the Innowalk Pro has positive effects on well-being. It is comfortable to use, promotes observable calmness, encourages creativity, and facilitates engagement with people or activities, provided that the children have sufficient energy to participate.
\n
You can read the full study report here.
\n
WHAT IS THE INNOWALK PRO? The Innowalk Pro is a unique, adjustable solution that enables people with moderate to profound physical disabilities to access movement and physical activity. It provides safe, guided, repetitive movement, close to normal gait, by supporting the body in an upright position with wright bearing. The equipment can be used in a special school setting, rehabilitation centers and therapy clinics. Learn more about the Innowalk Pro . \n
The storybook \"My Adventures in the Innowalk \" presents the research data in a format that children and young people can understand, and is a way of sharing the stories of the ten participants. The children and young people’s own words are placed in “italics ”. They chose a different name to protect their identity, their ages stated were at the point of data collection.
\n
\n
\n
Whilst a small number of books are printed for the participant’s benefit, this illustrated storybook can be downloaded here .
\n
The production of this storybook was made possible by the support of the Baily Thomas Charitable Trust in 2023. The images were created by Alison Howard Illustration . To support the children who could not read, an audio version of this book was recorded.
\n
Read more: Innowalk Pro - physical activity in a special needs school
\n
You can also download the poster of the study presented at the EACD 2023 in Ljubljana, Slovenia here. For more information on this work please contact:
\n
Dr Dawn M Pickering, Former Reader in Childhood Disability, Cardiff University’s School of Healthcare Sciences
\n
Thank you Dr Dawn M Pickering for letting us share your great work with our audience.
\n
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
\n
The original study was funded by the Association of Paediatric Chartered Physiotherapists (APCP) , in 2022. This study observed ten children, aged four to eighteen, with complex disabilities using the Innowalk PRO at a special school in Wales. The study aimed to gather evidence of the participants ’ well-being when using the Innowalk Pro to increase their physical activity levels. The three observations of each participant were mapped onto a new well-being scale (WEBS). The domains of this well-being scale include calmness, comfort, creativity, energy, engagement, and joy. This research utilised the Innowalk Pro to observe well-being indicators in the children’s responses through a case study design. Ten cases were made up from observational field notes, diaries and interviews with children and their parents. Three themes were identified:
\n
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\nparticipation: anticipation and tolerance \n \n
\nphysical effects: improved self-regulation of sleep, bowel and muscle tone \n \n
Overall, the Well-being (WEBS) study demonstrated that the Innowalk Pro has positive effects on well-being. It is comfortable to use, promotes observable calmness, encourages creativity, and facilitates engagement with people or activities, provided that the children have sufficient energy to participate.
\n
You can read the full study report here.
\n
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The storybook \"My Adventures in the Innowalk \" presents the research data in a format that children and young people can understand, and is a way of sharing the stories of the ten participants. The children and young people’s own words are placed in “italics ”. They chose a different name to protect their identity, their ages stated were at the point of data collection.
\n
\n
\n
Whilst a small number of books are printed for the participant’s benefit, this illustrated storybook can be downloaded here .
\n
The production of this storybook was made possible by the support of the Baily Thomas Charitable Trust in 2023. The images were created by Alison Howard Illustration . To support the children who could not read, an audio version of this book was recorded.
\n
Read more: Innowalk Pro - physical activity in a special needs school
\n
You can also download the poster of the study presented at the EACD 2023 in Ljubljana, Slovenia here. For more information on this work please contact:
\n
Dr Dawn M Pickering, Former Reader in Childhood Disability, Cardiff University’s School of Healthcare Sciences
\n
Thank you Dr Dawn M Pickering for letting us share your great work with our audience.
\n
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
\n
The original study was funded by the Association of Paediatric Chartered Physiotherapists (APCP) , in 2022. This study observed ten children, aged four to eighteen, with complex disabilities using the Innowalk PRO at a special school in Wales. The study aimed to gather evidence of the participants ’ well-being when using the Innowalk Pro to increase their physical activity levels. The three observations of each participant were mapped onto a new well-being scale (WEBS). The domains of this well-being scale include calmness, comfort, creativity, energy, engagement, and joy. This research utilised the Innowalk Pro to observe well-being indicators in the children’s responses through a case study design. Ten cases were made up from observational field notes, diaries and interviews with children and their parents. Three themes were identified:
\n
\nwell-being: mood and achievements \n \n
\nparticipation: anticipation and tolerance \n \n
\nphysical effects: improved self-regulation of sleep, bowel and muscle tone \n \n
Overall, the Well-being (WEBS) study demonstrated that the Innowalk Pro has positive effects on well-being. It is comfortable to use, promotes observable calmness, encourages creativity, and facilitates engagement with people or activities, provided that the children have sufficient energy to participate.
\n
You can read the full study report here.
\n
WHAT IS THE INNOWALK PRO? The Innowalk Pro is a unique, adjustable solution that enables people with moderate to profound physical disabilities to access movement and physical activity. It provides safe, guided, repetitive movement, close to normal gait, by supporting the body in an upright position with wright bearing. The equipment can be used in a special school setting, rehabilitation centers and therapy clinics. Learn more about the Innowalk Pro . \n
The storybook \"My Adventures in the Innowalk \" presents the research data in a format that children and young people can understand, and is a way of sharing the stories of the ten participants. The children and young people’s own words are placed in “italics ”. They chose a different name to protect their identity, their ages stated were at the point of data collection.
\n
\n
\n
Whilst a small number of books are printed for the participant’s benefit, this illustrated storybook can be downloaded here .
\n
The production of this storybook was made possible by the support of the Baily Thomas Charitable Trust in 2023. The images were created by Alison Howard Illustration . To support the children who could not read, an audio version of this book was recorded.
\n
Read more: Innowalk Pro - physical activity in a special needs school
\n
You can also download the poster of the study presented at the EACD 2023 in Ljubljana, Slovenia here. For more information on this work please contact:
\n
Dr Dawn M Pickering, Former Reader in Childhood Disability, Cardiff University’s School of Healthcare Sciences
\n
Thank you Dr Dawn M Pickering for letting us share your great work with our audience.
\n
","postBodyRss":"
Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
\n
The original study was funded by the Association of Paediatric Chartered Physiotherapists (APCP) , in 2022. This study observed ten children, aged four to eighteen, with complex disabilities using the Innowalk PRO at a special school in Wales. The study aimed to gather evidence of the participants ’ well-being when using the Innowalk Pro to increase their physical activity levels. The three observations of each participant were mapped onto a new well-being scale (WEBS). The domains of this well-being scale include calmness, comfort, creativity, energy, engagement, and joy. This research utilised the Innowalk Pro to observe well-being indicators in the children’s responses through a case study design. Ten cases were made up from observational field notes, diaries and interviews with children and their parents. Three themes were identified:
\n
\nwell-being: mood and achievements \n \n
\nparticipation: anticipation and tolerance \n \n
\nphysical effects: improved self-regulation of sleep, bowel and muscle tone \n \n
Overall, the Well-being (WEBS) study demonstrated that the Innowalk Pro has positive effects on well-being. It is comfortable to use, promotes observable calmness, encourages creativity, and facilitates engagement with people or activities, provided that the children have sufficient energy to participate.
\n
You can read the full study report here.
\n
WHAT IS THE INNOWALK PRO? The Innowalk Pro is a unique, adjustable solution that enables people with moderate to profound physical disabilities to access movement and physical activity. It provides safe, guided, repetitive movement, close to normal gait, by supporting the body in an upright position with wright bearing. The equipment can be used in a special school setting, rehabilitation centers and therapy clinics. Learn more about the Innowalk Pro . \n
The storybook \"My Adventures in the Innowalk \" presents the research data in a format that children and young people can understand, and is a way of sharing the stories of the ten participants. The children and young people’s own words are placed in “italics ”. They chose a different name to protect their identity, their ages stated were at the point of data collection.
\n
\n
\n
Whilst a small number of books are printed for the participant’s benefit, this illustrated storybook can be downloaded here .
\n
The production of this storybook was made possible by the support of the Baily Thomas Charitable Trust in 2023. The images were created by Alison Howard Illustration . To support the children who could not read, an audio version of this book was recorded.
\n
Read more: Innowalk Pro - physical activity in a special needs school
\n
You can also download the poster of the study presented at the EACD 2023 in Ljubljana, Slovenia here. For more information on this work please contact:
\n
Dr Dawn M Pickering, Former Reader in Childhood Disability, Cardiff University’s School of Healthcare Sciences
\n
Thank you Dr Dawn M Pickering for letting us share your great work with our audience.
\n
","postEmailContent":"
Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
\n
The original study was funded by the Association of Paediatric Chartered Physiotherapists (APCP) , in 2022. This study observed ten children, aged four to eighteen, with complex disabilities using the Innowalk PRO at a special school in Wales. The study aimed to gather evidence of the participants ’ well-being when using the Innowalk Pro to increase their physical activity levels. The three observations of each participant were mapped onto a new well-being scale (WEBS). The domains of this well-being scale include calmness, comfort, creativity, energy, engagement, and joy. This research utilised the Innowalk Pro to observe well-being indicators in the children’s responses through a case study design. Ten cases were made up from observational field notes, diaries and interviews with children and their parents. Three themes were identified:
\n
\nwell-being: mood and achievements \n \n
\nparticipation: anticipation and tolerance \n \n
\nphysical effects: improved self-regulation of sleep, bowel and muscle tone \n \n
Overall, the Well-being (WEBS) study demonstrated that the Innowalk Pro has positive effects on well-being. It is comfortable to use, promotes observable calmness, encourages creativity, and facilitates engagement with people or activities, provided that the children have sufficient energy to participate.
\n
You can read the full study report here.
\n
WHAT IS THE INNOWALK PRO? The Innowalk Pro is a unique, adjustable solution that enables people with moderate to profound physical disabilities to access movement and physical activity. It provides safe, guided, repetitive movement, close to normal gait, by supporting the body in an upright position with wright bearing. The equipment can be used in a special school setting, rehabilitation centers and therapy clinics. Learn more about the Innowalk Pro . \n
The storybook \"My Adventures in the Innowalk \" presents the research data in a format that children and young people can understand, and is a way of sharing the stories of the ten participants. The children and young people’s own words are placed in “italics ”. They chose a different name to protect their identity, their ages stated were at the point of data collection.
\n
\n
\n
Whilst a small number of books are printed for the participant’s benefit, this illustrated storybook can be downloaded here .
\n
The production of this storybook was made possible by the support of the Baily Thomas Charitable Trust in 2023. The images were created by Alison Howard Illustration . To support the children who could not read, an audio version of this book was recorded.
\n
Read more: Innowalk Pro - physical activity in a special needs school
\n
You can also download the poster of the study presented at the EACD 2023 in Ljubljana, Slovenia here. For more information on this work please contact:
\n
Dr Dawn M Pickering, Former Reader in Childhood Disability, Cardiff University’s School of Healthcare Sciences
\n
Thank you Dr Dawn M Pickering for letting us share your great work with our audience.
\n
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Dr. Dawn M. Pickering created this vibrant illustrated storybook as part of her study to explore the wellbeing of individuals with complex disabilities. This storybook isn't just research— it's a powerful tool that lets participants share their unique stories and amplifies voices that often go unheard.
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15-Jan-2025 My Adventures in the Innowalk
"My Adventures in the Innowalk" is an illustrated storybook that was developed as part of a study aimed at assessing the wellbeing of individuals with complex disabilities.
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His favorite thing is visiting the neighbor's geese and chickens
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\n\n- During a 3D ultrasound in the seventh month, it was discovered that Zyan had various malformations, which made us have to be prepared for the worst. The doctors even advised me to terminate the pregnancy,\" Zyan's mother, Gezal, tells us during our interview. \"It's probably a genetic defect, but to this day, the doctors can't say for sure what it is. - The family's interaction and acceptance were the most important from the beginning. We were prepared for the worst and we welcomed him with open arms,\" Gezal continues, \"and in the end, it didn't turn out as bad as predicted. Sure, it was tough in the beginning. But day by day, we have grown into the task. We love him as he is. He is our sunshine and a true joy spreader. We also know that he will need help throughout his life. That's why it's important for the family that Zyan is always at the center of events and that we can be mobile with him.
\nThe longing for mobility was great from the beginning \nEspecially the longing for mobility was significant from the beginning, which did a lot to improve Zyan's mobility. Gezal tells us that she has done a lot of research on the internet and continues to do so to gather information about the possibilities and support available for children with disabilities. That's why Zyan also received intensive Petö therapy when he was three years old, a therapy he completed two years ago, and currently, Zyan receives neuroactive reflex therapy. In addition, he had access to many different aids.
\nZyan's first walking aid was the NF-Walker. Gezal came across the NF-Walker when she did her own research on the internet. However, at the socio-pediatric centers (SPZ), she was informed that the NF-Walker has been designed as a walking aid for children with spastic disabilities and that Zyan does not fit the mold. Despite this, she did not give up and applied for the walking aid at the assistive devices center and was granted it.
\nZyan received his NF-Walker in early 2018. \"We had to practice a lot with Zyan\", remembers Gezal. 'We had to show him and work with him over and over again - even the neighbors and their children practiced with Zyan. At first, he just stood in his NF-Walker without moving. After a while and a week's break - we were on vacation - it was like everything fell into place. Gezal put him in the NF-Walker in the afternoon and that's when Zyan walked in it for the first time. After that, it was pure child's play to transition to Xplore . Zyan already knew the movements and started walking with Xplore immediately when he received it in November 2020.
\nXPLORE Xplore is a walking aid for children with complex movement disorders who are unable to support their own body weight. Thanks to Xplore, they can stand without assistance and walk longer distances. It makes them more mobile and more involved. \nSwitching from one walking aid to another was quite easy \n- I was curious about how he would accept the new walking trainer, especially considering it was a new device on the market. But I put him in it, and he started walking right away, recalls Gezal. - By the way, we were recommended it by our product specialist at Made for Movement. In Xplore, Zyan sits on a saddle reminiscent of a bicycle saddle, allowing him to be more active and use the aid for longer periods. When he gets tired, he just throws himself down. And that's completely okay with his mom.
\nHow long does Zyan use the walking aid Xplore? \nZyan practices in Xplore every day for about an hour. Sometimes it can be more than that, depending on what we're doing. He mostly enjoys using Xplore outdoors. He takes his round in the neighborhood with Xplore, visits the neighbor's animals, and meets the neighboring children to play with them. If he gets too tired, he shows it with gestures and facial expressions, and then his mom takes him out of the aid. Zyan's sister, Dilan (5 years old), likes to play with him and Xplore. She stands behind Xplore, and they take a round in the house: the children pretend they're on a bus. - \"That's how they create their own world,\" laughs Gezal.
\nStronger muscles and enhanced movement \nSince Zyan already used the NF-Walker before he got Xplore, he needed less support now, which allowed for the introduction of a walking aid without guidance control. The combination of targeted mobility and good correction is intended to help Zyan feel his legs better, to be able to use them in a more targeted way. His mother tells us with joy in her voice that regular training has had a very positive effect and that Zyan has become much stronger in his legs. Now he can stretch his legs better, and his ataxia has also improved. Movements that were barely possible for Zyan before, he can now almost do by himself, such as getting up on the sofa or his bed. You can clearly see that he has gained more muscle mass in his legs, allowing him to move himself. This means that Zyan, who otherwise could only move around on the floor by crawling or rolling, now comes up to eye level with children his age. - For Zyan, this is a crazy feeling of freedom and happiness at the same time, says his mother happily. \"Furthermore, Xplore stimulates circulation, and a lot happens in his head too,\" says Gezal enthusiastically. \"As soon as he gets into an upright position, you can see immediately that he changes and becomes a completely different boy. In the upright position, I see that he can clearly orient himself and also indicate which direction he wants to go. His attention improves, and if things don't go as he wants, he switches to walking backwards. That's how his strong will can express itself.\"
\nThe family's expectations have also been met \nToday, the family takes him everywhere, so they primarily use a wheelchair. On outings and vacations, he is always with them for as long as possible. The new aids make it even easier. In January 2021, Zyan got another sibling. - \"The little sister is good for him,\" says Zyan's mother happily. The two sisters provide structure and normalcy to the family, but also to Zyan's life. Typically, parents who have a child with a disability focus on that child and tend to be overprotective. But when there are siblings involved, they bring you back to reality, to a normal life. It's good for the whole family and especially for Zyan. In addition to training with the aids, Zyan attends physiotherapy, occupational therapy, and speech therapy once a week. All of this takes place at school. Zyan attends a special school, and in his class, there are seven other children. All children have different needs. - \"For Zyan, it means that he goes to school with children who also have a disability. I think the best thing about school for Zyan is that he can be with children who aren't superior to him in everything and who can meet him at eye level,\" says Gezal. At school, the NF-Walker still serves as a backup solution. But mainly, Zyan uses Xplore. With this walking aid, he is much more active and mobile. Xplore is perfect for outdoor use and for exploring the world.
\nSimple and quick handling of Xplore \n- \"Time is no excuse,\" assures Gezal. Xplore is easy to handle. Usually, Zyan already has orthoses and shoes on, and then I can just lift him and place him in the device. Fasten the straps, and he can start walking.\" Gezal has little understanding for parents who say they don't have time for this device. She always explains to the parents how easy it is and that they have to put on and take off shoes for other children as well. She compares it to using Xplore. Especially if children with disabilities want and can walk, parents should encourage this. Moreover, parents become faster with practice. Daily training makes it routine and eventually something normal.
\nWhat are your hopes and dreams for your child's future? \n- I would like Zyan to become as independent as possible when it comes to his basic needs. For me, this means that he can operate his aids, use the toilet without assistance, and hopefully, eventually be able to eat on his own. If he becomes more independent in these three areas, it would be the best thing that could happen for him - and for me. Patience and continuity are important, according to Gezal. Gezal sees that Zyan is constantly developing. There have never been any steps backward, even though sometimes a long time passes without any progress, but then Zyan makes progress again. Therefore, she wants to encourage parents of children with disabilities, instill courage in them, and advise them to never give up - because someday the work will pay off.
\nMobility and participation with the walking aid Xplore! \nIn this video, we demonstrate the functionality of Xplore, its intended users, and how to use it effectively.
\n\n
\n
","rss_summary":"Zyan is a 7-year-old boy and a real ray of sunshine who loves exploring his hometown in his walking aid Xplore. His favorite thing is visiting the neighbor's geese and chickens
\n","rss_body":"Zyan is a 7-year-old boy and a real ray of sunshine who loves exploring his hometown in his walking aid Xplore. His favorite thing is visiting the neighbor's geese and chickens
\n\n- During a 3D ultrasound in the seventh month, it was discovered that Zyan had various malformations, which made us have to be prepared for the worst. The doctors even advised me to terminate the pregnancy,\" Zyan's mother, Gezal, tells us during our interview. \"It's probably a genetic defect, but to this day, the doctors can't say for sure what it is. - The family's interaction and acceptance were the most important from the beginning. We were prepared for the worst and we welcomed him with open arms,\" Gezal continues, \"and in the end, it didn't turn out as bad as predicted. Sure, it was tough in the beginning. But day by day, we have grown into the task. We love him as he is. He is our sunshine and a true joy spreader. We also know that he will need help throughout his life. That's why it's important for the family that Zyan is always at the center of events and that we can be mobile with him.
\nThe longing for mobility was great from the beginning \nEspecially the longing for mobility was significant from the beginning, which did a lot to improve Zyan's mobility. Gezal tells us that she has done a lot of research on the internet and continues to do so to gather information about the possibilities and support available for children with disabilities. That's why Zyan also received intensive Petö therapy when he was three years old, a therapy he completed two years ago, and currently, Zyan receives neuroactive reflex therapy. In addition, he had access to many different aids.
\nZyan's first walking aid was the NF-Walker. Gezal came across the NF-Walker when she did her own research on the internet. However, at the socio-pediatric centers (SPZ), she was informed that the NF-Walker has been designed as a walking aid for children with spastic disabilities and that Zyan does not fit the mold. Despite this, she did not give up and applied for the walking aid at the assistive devices center and was granted it.
\nZyan received his NF-Walker in early 2018. \"We had to practice a lot with Zyan\", remembers Gezal. 'We had to show him and work with him over and over again - even the neighbors and their children practiced with Zyan. At first, he just stood in his NF-Walker without moving. After a while and a week's break - we were on vacation - it was like everything fell into place. Gezal put him in the NF-Walker in the afternoon and that's when Zyan walked in it for the first time. After that, it was pure child's play to transition to Xplore . Zyan already knew the movements and started walking with Xplore immediately when he received it in November 2020.
\nXPLORE Xplore is a walking aid for children with complex movement disorders who are unable to support their own body weight. Thanks to Xplore, they can stand without assistance and walk longer distances. It makes them more mobile and more involved. \nSwitching from one walking aid to another was quite easy \n- I was curious about how he would accept the new walking trainer, especially considering it was a new device on the market. But I put him in it, and he started walking right away, recalls Gezal. - By the way, we were recommended it by our product specialist at Made for Movement. In Xplore, Zyan sits on a saddle reminiscent of a bicycle saddle, allowing him to be more active and use the aid for longer periods. When he gets tired, he just throws himself down. And that's completely okay with his mom.
\nHow long does Zyan use the walking aid Xplore? \nZyan practices in Xplore every day for about an hour. Sometimes it can be more than that, depending on what we're doing. He mostly enjoys using Xplore outdoors. He takes his round in the neighborhood with Xplore, visits the neighbor's animals, and meets the neighboring children to play with them. If he gets too tired, he shows it with gestures and facial expressions, and then his mom takes him out of the aid. Zyan's sister, Dilan (5 years old), likes to play with him and Xplore. She stands behind Xplore, and they take a round in the house: the children pretend they're on a bus. - \"That's how they create their own world,\" laughs Gezal.
\nStronger muscles and enhanced movement \nSince Zyan already used the NF-Walker before he got Xplore, he needed less support now, which allowed for the introduction of a walking aid without guidance control. The combination of targeted mobility and good correction is intended to help Zyan feel his legs better, to be able to use them in a more targeted way. His mother tells us with joy in her voice that regular training has had a very positive effect and that Zyan has become much stronger in his legs. Now he can stretch his legs better, and his ataxia has also improved. Movements that were barely possible for Zyan before, he can now almost do by himself, such as getting up on the sofa or his bed. You can clearly see that he has gained more muscle mass in his legs, allowing him to move himself. This means that Zyan, who otherwise could only move around on the floor by crawling or rolling, now comes up to eye level with children his age. - For Zyan, this is a crazy feeling of freedom and happiness at the same time, says his mother happily. \"Furthermore, Xplore stimulates circulation, and a lot happens in his head too,\" says Gezal enthusiastically. \"As soon as he gets into an upright position, you can see immediately that he changes and becomes a completely different boy. In the upright position, I see that he can clearly orient himself and also indicate which direction he wants to go. His attention improves, and if things don't go as he wants, he switches to walking backwards. That's how his strong will can express itself.\"
\nThe family's expectations have also been met \nToday, the family takes him everywhere, so they primarily use a wheelchair. On outings and vacations, he is always with them for as long as possible. The new aids make it even easier. In January 2021, Zyan got another sibling. - \"The little sister is good for him,\" says Zyan's mother happily. The two sisters provide structure and normalcy to the family, but also to Zyan's life. Typically, parents who have a child with a disability focus on that child and tend to be overprotective. But when there are siblings involved, they bring you back to reality, to a normal life. It's good for the whole family and especially for Zyan. In addition to training with the aids, Zyan attends physiotherapy, occupational therapy, and speech therapy once a week. All of this takes place at school. Zyan attends a special school, and in his class, there are seven other children. All children have different needs. - \"For Zyan, it means that he goes to school with children who also have a disability. I think the best thing about school for Zyan is that he can be with children who aren't superior to him in everything and who can meet him at eye level,\" says Gezal. At school, the NF-Walker still serves as a backup solution. But mainly, Zyan uses Xplore. With this walking aid, he is much more active and mobile. Xplore is perfect for outdoor use and for exploring the world.
\nSimple and quick handling of Xplore \n- \"Time is no excuse,\" assures Gezal. Xplore is easy to handle. Usually, Zyan already has orthoses and shoes on, and then I can just lift him and place him in the device. Fasten the straps, and he can start walking.\" Gezal has little understanding for parents who say they don't have time for this device. She always explains to the parents how easy it is and that they have to put on and take off shoes for other children as well. She compares it to using Xplore. Especially if children with disabilities want and can walk, parents should encourage this. Moreover, parents become faster with practice. Daily training makes it routine and eventually something normal.
\nWhat are your hopes and dreams for your child's future? \n- I would like Zyan to become as independent as possible when it comes to his basic needs. For me, this means that he can operate his aids, use the toilet without assistance, and hopefully, eventually be able to eat on his own. If he becomes more independent in these three areas, it would be the best thing that could happen for him - and for me. Patience and continuity are important, according to Gezal. Gezal sees that Zyan is constantly developing. There have never been any steps backward, even though sometimes a long time passes without any progress, but then Zyan makes progress again. Therefore, she wants to encourage parents of children with disabilities, instill courage in them, and advise them to never give up - because someday the work will pay off.
\nMobility and participation with the walking aid Xplore! \nIn this video, we demonstrate the functionality of Xplore, its intended users, and how to use it effectively.
\n\n
\n
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His favorite thing is visiting the neighbor's geese and chickens
\n\n- During a 3D ultrasound in the seventh month, it was discovered that Zyan had various malformations, which made us have to be prepared for the worst. The doctors even advised me to terminate the pregnancy,\" Zyan's mother, Gezal, tells us during our interview. \"It's probably a genetic defect, but to this day, the doctors can't say for sure what it is. - The family's interaction and acceptance were the most important from the beginning. We were prepared for the worst and we welcomed him with open arms,\" Gezal continues, \"and in the end, it didn't turn out as bad as predicted. Sure, it was tough in the beginning. But day by day, we have grown into the task. We love him as he is. He is our sunshine and a true joy spreader. We also know that he will need help throughout his life. That's why it's important for the family that Zyan is always at the center of events and that we can be mobile with him.
\nThe longing for mobility was great from the beginning \nEspecially the longing for mobility was significant from the beginning, which did a lot to improve Zyan's mobility. Gezal tells us that she has done a lot of research on the internet and continues to do so to gather information about the possibilities and support available for children with disabilities. That's why Zyan also received intensive Petö therapy when he was three years old, a therapy he completed two years ago, and currently, Zyan receives neuroactive reflex therapy. In addition, he had access to many different aids.
\nZyan's first walking aid was the NF-Walker. Gezal came across the NF-Walker when she did her own research on the internet. However, at the socio-pediatric centers (SPZ), she was informed that the NF-Walker has been designed as a walking aid for children with spastic disabilities and that Zyan does not fit the mold. Despite this, she did not give up and applied for the walking aid at the assistive devices center and was granted it.
\nZyan received his NF-Walker in early 2018. \"We had to practice a lot with Zyan\", remembers Gezal. 'We had to show him and work with him over and over again - even the neighbors and their children practiced with Zyan. At first, he just stood in his NF-Walker without moving. After a while and a week's break - we were on vacation - it was like everything fell into place. Gezal put him in the NF-Walker in the afternoon and that's when Zyan walked in it for the first time. After that, it was pure child's play to transition to Xplore . Zyan already knew the movements and started walking with Xplore immediately when he received it in November 2020.
\nXPLORE Xplore is a walking aid for children with complex movement disorders who are unable to support their own body weight. Thanks to Xplore, they can stand without assistance and walk longer distances. It makes them more mobile and more involved. \nSwitching from one walking aid to another was quite easy \n- I was curious about how he would accept the new walking trainer, especially considering it was a new device on the market. But I put him in it, and he started walking right away, recalls Gezal. - By the way, we were recommended it by our product specialist at Made for Movement. In Xplore, Zyan sits on a saddle reminiscent of a bicycle saddle, allowing him to be more active and use the aid for longer periods. When he gets tired, he just throws himself down. And that's completely okay with his mom.
\nHow long does Zyan use the walking aid Xplore? \nZyan practices in Xplore every day for about an hour. Sometimes it can be more than that, depending on what we're doing. He mostly enjoys using Xplore outdoors. He takes his round in the neighborhood with Xplore, visits the neighbor's animals, and meets the neighboring children to play with them. If he gets too tired, he shows it with gestures and facial expressions, and then his mom takes him out of the aid. Zyan's sister, Dilan (5 years old), likes to play with him and Xplore. She stands behind Xplore, and they take a round in the house: the children pretend they're on a bus. - \"That's how they create their own world,\" laughs Gezal.
\nStronger muscles and enhanced movement \nSince Zyan already used the NF-Walker before he got Xplore, he needed less support now, which allowed for the introduction of a walking aid without guidance control. The combination of targeted mobility and good correction is intended to help Zyan feel his legs better, to be able to use them in a more targeted way. His mother tells us with joy in her voice that regular training has had a very positive effect and that Zyan has become much stronger in his legs. Now he can stretch his legs better, and his ataxia has also improved. Movements that were barely possible for Zyan before, he can now almost do by himself, such as getting up on the sofa or his bed. You can clearly see that he has gained more muscle mass in his legs, allowing him to move himself. This means that Zyan, who otherwise could only move around on the floor by crawling or rolling, now comes up to eye level with children his age. - For Zyan, this is a crazy feeling of freedom and happiness at the same time, says his mother happily. \"Furthermore, Xplore stimulates circulation, and a lot happens in his head too,\" says Gezal enthusiastically. \"As soon as he gets into an upright position, you can see immediately that he changes and becomes a completely different boy. In the upright position, I see that he can clearly orient himself and also indicate which direction he wants to go. His attention improves, and if things don't go as he wants, he switches to walking backwards. That's how his strong will can express itself.\"
\nThe family's expectations have also been met \nToday, the family takes him everywhere, so they primarily use a wheelchair. On outings and vacations, he is always with them for as long as possible. The new aids make it even easier. In January 2021, Zyan got another sibling. - \"The little sister is good for him,\" says Zyan's mother happily. The two sisters provide structure and normalcy to the family, but also to Zyan's life. Typically, parents who have a child with a disability focus on that child and tend to be overprotective. But when there are siblings involved, they bring you back to reality, to a normal life. It's good for the whole family and especially for Zyan. In addition to training with the aids, Zyan attends physiotherapy, occupational therapy, and speech therapy once a week. All of this takes place at school. Zyan attends a special school, and in his class, there are seven other children. All children have different needs. - \"For Zyan, it means that he goes to school with children who also have a disability. I think the best thing about school for Zyan is that he can be with children who aren't superior to him in everything and who can meet him at eye level,\" says Gezal. At school, the NF-Walker still serves as a backup solution. But mainly, Zyan uses Xplore. With this walking aid, he is much more active and mobile. Xplore is perfect for outdoor use and for exploring the world.
\nSimple and quick handling of Xplore \n- \"Time is no excuse,\" assures Gezal. Xplore is easy to handle. Usually, Zyan already has orthoses and shoes on, and then I can just lift him and place him in the device. Fasten the straps, and he can start walking.\" Gezal has little understanding for parents who say they don't have time for this device. She always explains to the parents how easy it is and that they have to put on and take off shoes for other children as well. She compares it to using Xplore. Especially if children with disabilities want and can walk, parents should encourage this. Moreover, parents become faster with practice. Daily training makes it routine and eventually something normal.
\nWhat are your hopes and dreams for your child's future? \n- I would like Zyan to become as independent as possible when it comes to his basic needs. For me, this means that he can operate his aids, use the toilet without assistance, and hopefully, eventually be able to eat on his own. If he becomes more independent in these three areas, it would be the best thing that could happen for him - and for me. Patience and continuity are important, according to Gezal. Gezal sees that Zyan is constantly developing. There have never been any steps backward, even though sometimes a long time passes without any progress, but then Zyan makes progress again. Therefore, she wants to encourage parents of children with disabilities, instill courage in them, and advise them to never give up - because someday the work will pay off.
\nMobility and participation with the walking aid Xplore! \nIn this video, we demonstrate the functionality of Xplore, its intended users, and how to use it effectively.
\n\n
\n
","postBodyRss":"Zyan is a 7-year-old boy and a real ray of sunshine who loves exploring his hometown in his walking aid Xplore. His favorite thing is visiting the neighbor's geese and chickens
\n\n- During a 3D ultrasound in the seventh month, it was discovered that Zyan had various malformations, which made us have to be prepared for the worst. The doctors even advised me to terminate the pregnancy,\" Zyan's mother, Gezal, tells us during our interview. \"It's probably a genetic defect, but to this day, the doctors can't say for sure what it is. - The family's interaction and acceptance were the most important from the beginning. We were prepared for the worst and we welcomed him with open arms,\" Gezal continues, \"and in the end, it didn't turn out as bad as predicted. Sure, it was tough in the beginning. But day by day, we have grown into the task. We love him as he is. He is our sunshine and a true joy spreader. We also know that he will need help throughout his life. That's why it's important for the family that Zyan is always at the center of events and that we can be mobile with him.
\nThe longing for mobility was great from the beginning \nEspecially the longing for mobility was significant from the beginning, which did a lot to improve Zyan's mobility. Gezal tells us that she has done a lot of research on the internet and continues to do so to gather information about the possibilities and support available for children with disabilities. That's why Zyan also received intensive Petö therapy when he was three years old, a therapy he completed two years ago, and currently, Zyan receives neuroactive reflex therapy. In addition, he had access to many different aids.
\nZyan's first walking aid was the NF-Walker. Gezal came across the NF-Walker when she did her own research on the internet. However, at the socio-pediatric centers (SPZ), she was informed that the NF-Walker has been designed as a walking aid for children with spastic disabilities and that Zyan does not fit the mold. Despite this, she did not give up and applied for the walking aid at the assistive devices center and was granted it.
\nZyan received his NF-Walker in early 2018. \"We had to practice a lot with Zyan\", remembers Gezal. 'We had to show him and work with him over and over again - even the neighbors and their children practiced with Zyan. At first, he just stood in his NF-Walker without moving. After a while and a week's break - we were on vacation - it was like everything fell into place. Gezal put him in the NF-Walker in the afternoon and that's when Zyan walked in it for the first time. After that, it was pure child's play to transition to Xplore . Zyan already knew the movements and started walking with Xplore immediately when he received it in November 2020.
\nXPLORE Xplore is a walking aid for children with complex movement disorders who are unable to support their own body weight. Thanks to Xplore, they can stand without assistance and walk longer distances. It makes them more mobile and more involved. \nSwitching from one walking aid to another was quite easy \n- I was curious about how he would accept the new walking trainer, especially considering it was a new device on the market. But I put him in it, and he started walking right away, recalls Gezal. - By the way, we were recommended it by our product specialist at Made for Movement. In Xplore, Zyan sits on a saddle reminiscent of a bicycle saddle, allowing him to be more active and use the aid for longer periods. When he gets tired, he just throws himself down. And that's completely okay with his mom.
\nHow long does Zyan use the walking aid Xplore? \nZyan practices in Xplore every day for about an hour. Sometimes it can be more than that, depending on what we're doing. He mostly enjoys using Xplore outdoors. He takes his round in the neighborhood with Xplore, visits the neighbor's animals, and meets the neighboring children to play with them. If he gets too tired, he shows it with gestures and facial expressions, and then his mom takes him out of the aid. Zyan's sister, Dilan (5 years old), likes to play with him and Xplore. She stands behind Xplore, and they take a round in the house: the children pretend they're on a bus. - \"That's how they create their own world,\" laughs Gezal.
\nStronger muscles and enhanced movement \nSince Zyan already used the NF-Walker before he got Xplore, he needed less support now, which allowed for the introduction of a walking aid without guidance control. The combination of targeted mobility and good correction is intended to help Zyan feel his legs better, to be able to use them in a more targeted way. His mother tells us with joy in her voice that regular training has had a very positive effect and that Zyan has become much stronger in his legs. Now he can stretch his legs better, and his ataxia has also improved. Movements that were barely possible for Zyan before, he can now almost do by himself, such as getting up on the sofa or his bed. You can clearly see that he has gained more muscle mass in his legs, allowing him to move himself. This means that Zyan, who otherwise could only move around on the floor by crawling or rolling, now comes up to eye level with children his age. - For Zyan, this is a crazy feeling of freedom and happiness at the same time, says his mother happily. \"Furthermore, Xplore stimulates circulation, and a lot happens in his head too,\" says Gezal enthusiastically. \"As soon as he gets into an upright position, you can see immediately that he changes and becomes a completely different boy. In the upright position, I see that he can clearly orient himself and also indicate which direction he wants to go. His attention improves, and if things don't go as he wants, he switches to walking backwards. That's how his strong will can express itself.\"
\nThe family's expectations have also been met \nToday, the family takes him everywhere, so they primarily use a wheelchair. On outings and vacations, he is always with them for as long as possible. The new aids make it even easier. In January 2021, Zyan got another sibling. - \"The little sister is good for him,\" says Zyan's mother happily. The two sisters provide structure and normalcy to the family, but also to Zyan's life. Typically, parents who have a child with a disability focus on that child and tend to be overprotective. But when there are siblings involved, they bring you back to reality, to a normal life. It's good for the whole family and especially for Zyan. In addition to training with the aids, Zyan attends physiotherapy, occupational therapy, and speech therapy once a week. All of this takes place at school. Zyan attends a special school, and in his class, there are seven other children. All children have different needs. - \"For Zyan, it means that he goes to school with children who also have a disability. I think the best thing about school for Zyan is that he can be with children who aren't superior to him in everything and who can meet him at eye level,\" says Gezal. At school, the NF-Walker still serves as a backup solution. But mainly, Zyan uses Xplore. With this walking aid, he is much more active and mobile. Xplore is perfect for outdoor use and for exploring the world.
\nSimple and quick handling of Xplore \n- \"Time is no excuse,\" assures Gezal. Xplore is easy to handle. Usually, Zyan already has orthoses and shoes on, and then I can just lift him and place him in the device. Fasten the straps, and he can start walking.\" Gezal has little understanding for parents who say they don't have time for this device. She always explains to the parents how easy it is and that they have to put on and take off shoes for other children as well. She compares it to using Xplore. Especially if children with disabilities want and can walk, parents should encourage this. Moreover, parents become faster with practice. Daily training makes it routine and eventually something normal.
\nWhat are your hopes and dreams for your child's future? \n- I would like Zyan to become as independent as possible when it comes to his basic needs. For me, this means that he can operate his aids, use the toilet without assistance, and hopefully, eventually be able to eat on his own. If he becomes more independent in these three areas, it would be the best thing that could happen for him - and for me. Patience and continuity are important, according to Gezal. Gezal sees that Zyan is constantly developing. There have never been any steps backward, even though sometimes a long time passes without any progress, but then Zyan makes progress again. Therefore, she wants to encourage parents of children with disabilities, instill courage in them, and advise them to never give up - because someday the work will pay off.
\nMobility and participation with the walking aid Xplore! \nIn this video, we demonstrate the functionality of Xplore, its intended users, and how to use it effectively.
\n\n
\n
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\n\n- During a 3D ultrasound in the seventh month, it was discovered that Zyan had various malformations, which made us have to be prepared for the worst. The doctors even advised me to terminate the pregnancy,\" Zyan's mother, Gezal, tells us during our interview. \"It's probably a genetic defect, but to this day, the doctors can't say for sure what it is. - The family's interaction and acceptance were the most important from the beginning. We were prepared for the worst and we welcomed him with open arms,\" Gezal continues, \"and in the end, it didn't turn out as bad as predicted. Sure, it was tough in the beginning. But day by day, we have grown into the task. We love him as he is. He is our sunshine and a true joy spreader. We also know that he will need help throughout his life. That's why it's important for the family that Zyan is always at the center of events and that we can be mobile with him.
\nThe longing for mobility was great from the beginning \nEspecially the longing for mobility was significant from the beginning, which did a lot to improve Zyan's mobility. Gezal tells us that she has done a lot of research on the internet and continues to do so to gather information about the possibilities and support available for children with disabilities. That's why Zyan also received intensive Petö therapy when he was three years old, a therapy he completed two years ago, and currently, Zyan receives neuroactive reflex therapy. In addition, he had access to many different aids.
\nZyan's first walking aid was the NF-Walker. Gezal came across the NF-Walker when she did her own research on the internet. However, at the socio-pediatric centers (SPZ), she was informed that the NF-Walker has been designed as a walking aid for children with spastic disabilities and that Zyan does not fit the mold. Despite this, she did not give up and applied for the walking aid at the assistive devices center and was granted it.
\nZyan received his NF-Walker in early 2018. \"We had to practice a lot with Zyan\", remembers Gezal. 'We had to show him and work with him over and over again - even the neighbors and their children practiced with Zyan. At first, he just stood in his NF-Walker without moving. After a while and a week's break - we were on vacation - it was like everything fell into place. Gezal put him in the NF-Walker in the afternoon and that's when Zyan walked in it for the first time. After that, it was pure child's play to transition to Xplore . Zyan already knew the movements and started walking with Xplore immediately when he received it in November 2020.
\nXPLORE Xplore is a walking aid for children with complex movement disorders who are unable to support their own body weight. Thanks to Xplore, they can stand without assistance and walk longer distances. It makes them more mobile and more involved. \nSwitching from one walking aid to another was quite easy \n- I was curious about how he would accept the new walking trainer, especially considering it was a new device on the market. But I put him in it, and he started walking right away, recalls Gezal. - By the way, we were recommended it by our product specialist at Made for Movement. In Xplore, Zyan sits on a saddle reminiscent of a bicycle saddle, allowing him to be more active and use the aid for longer periods. When he gets tired, he just throws himself down. And that's completely okay with his mom.
\nHow long does Zyan use the walking aid Xplore? \nZyan practices in Xplore every day for about an hour. Sometimes it can be more than that, depending on what we're doing. He mostly enjoys using Xplore outdoors. He takes his round in the neighborhood with Xplore, visits the neighbor's animals, and meets the neighboring children to play with them. If he gets too tired, he shows it with gestures and facial expressions, and then his mom takes him out of the aid. Zyan's sister, Dilan (5 years old), likes to play with him and Xplore. She stands behind Xplore, and they take a round in the house: the children pretend they're on a bus. - \"That's how they create their own world,\" laughs Gezal.
\nStronger muscles and enhanced movement \nSince Zyan already used the NF-Walker before he got Xplore, he needed less support now, which allowed for the introduction of a walking aid without guidance control. The combination of targeted mobility and good correction is intended to help Zyan feel his legs better, to be able to use them in a more targeted way. His mother tells us with joy in her voice that regular training has had a very positive effect and that Zyan has become much stronger in his legs. Now he can stretch his legs better, and his ataxia has also improved. Movements that were barely possible for Zyan before, he can now almost do by himself, such as getting up on the sofa or his bed. You can clearly see that he has gained more muscle mass in his legs, allowing him to move himself. This means that Zyan, who otherwise could only move around on the floor by crawling or rolling, now comes up to eye level with children his age. - For Zyan, this is a crazy feeling of freedom and happiness at the same time, says his mother happily. \"Furthermore, Xplore stimulates circulation, and a lot happens in his head too,\" says Gezal enthusiastically. \"As soon as he gets into an upright position, you can see immediately that he changes and becomes a completely different boy. In the upright position, I see that he can clearly orient himself and also indicate which direction he wants to go. His attention improves, and if things don't go as he wants, he switches to walking backwards. That's how his strong will can express itself.\"
\nThe family's expectations have also been met \nToday, the family takes him everywhere, so they primarily use a wheelchair. On outings and vacations, he is always with them for as long as possible. The new aids make it even easier. In January 2021, Zyan got another sibling. - \"The little sister is good for him,\" says Zyan's mother happily. The two sisters provide structure and normalcy to the family, but also to Zyan's life. Typically, parents who have a child with a disability focus on that child and tend to be overprotective. But when there are siblings involved, they bring you back to reality, to a normal life. It's good for the whole family and especially for Zyan. In addition to training with the aids, Zyan attends physiotherapy, occupational therapy, and speech therapy once a week. All of this takes place at school. Zyan attends a special school, and in his class, there are seven other children. All children have different needs. - \"For Zyan, it means that he goes to school with children who also have a disability. I think the best thing about school for Zyan is that he can be with children who aren't superior to him in everything and who can meet him at eye level,\" says Gezal. At school, the NF-Walker still serves as a backup solution. But mainly, Zyan uses Xplore. With this walking aid, he is much more active and mobile. Xplore is perfect for outdoor use and for exploring the world.
\nSimple and quick handling of Xplore \n- \"Time is no excuse,\" assures Gezal. Xplore is easy to handle. Usually, Zyan already has orthoses and shoes on, and then I can just lift him and place him in the device. Fasten the straps, and he can start walking.\" Gezal has little understanding for parents who say they don't have time for this device. She always explains to the parents how easy it is and that they have to put on and take off shoes for other children as well. She compares it to using Xplore. Especially if children with disabilities want and can walk, parents should encourage this. Moreover, parents become faster with practice. Daily training makes it routine and eventually something normal.
\nWhat are your hopes and dreams for your child's future? \n- I would like Zyan to become as independent as possible when it comes to his basic needs. For me, this means that he can operate his aids, use the toilet without assistance, and hopefully, eventually be able to eat on his own. If he becomes more independent in these three areas, it would be the best thing that could happen for him - and for me. Patience and continuity are important, according to Gezal. Gezal sees that Zyan is constantly developing. There have never been any steps backward, even though sometimes a long time passes without any progress, but then Zyan makes progress again. Therefore, she wants to encourage parents of children with disabilities, instill courage in them, and advise them to never give up - because someday the work will pay off.
\nMobility and participation with the walking aid Xplore! \nIn this video, we demonstrate the functionality of Xplore, its intended users, and how to use it effectively.
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21-Aug-2024 [Video] Meet Zyan and his walking aid, Xplore.
Zyan has several disabilities. In the walking aid Xplore, he walks upright, trains his leg muscles, and thus gains more mobility and a sense of joy in life