[Video] This Is How Selma Lives with Retts syndrome
Innowalk and adaptations make Selma able to live an active and enjoyable life despite a few challenges.
Meet Live, a 4-year-old girl with Rett syndrome who loves action
Live is a tender and cheerful 4-year-old girl. She’s diagnosed with Rett syndrome, but has a more atypical disease course , which means she cannot sit, stand or walk. Live makes good eye contact and has learned to…
What Is Rett Syndrome?
Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls. It affect s the brain development and causes a progressive loss of motor skills and cognitive function.
Why do hip problems occur, and can they be prevented?
Children, young people and adults with physical disabilities such as cerebral palsy are at increased risk of developing problems with their hips. The hip can become completely dislocated over time; a phenomenon…
How to manage pain in children and adults with cerebral palsy
Three out of four people with cerebral palsy (CP) experience pain. It is a complex, secondary condition compromising functional abilities and quality of life. Pain assessment is often challenging to perform,…
5 things you should know about scoliosis
Scoliosis is a sideway curvature of the spine and o ften occurs second ary to a neuromuscular disorder, such as Cerebral palsy , spina bifida and spinal cord injury. People with a more severe condition are at higher…
Katarina lives an active life despite severe disability
Ever since Katarina was little we have aspired to do everything as a family. If the activity was difficult for Katarina, we tried to find equipment that allowed her to participate. We have always focused on the…
A very ordinary life… in a rather unusual Covid-19 time
I, Elin, am the mother of three amazing adolescent and grown-up girls. Our youngest child in the family, Sofie, is 15 years old and will start in 10th grade this autumn. Sofie has dyskinetic CP (level 5) and needs…