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For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
","post_body":"A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
\nIn this article, you’ll read about: - Start early – Plan ahead - Healthcare transition: From paediatric to adult care - Building life skills & independent living foundations - Education, employment & vocational planning - Addressing gaps & empowering your child - Emotional transition: Letting go while staying involved \nStart early – Plan ahead \nTransitions do not happen all at once. They begin long before the eighteenth birthday. Many families find it helpful to start considering the future when their child is around fourteen. This early preparation allows time to address healthcare, education, social participation, and independence gradually. Schools, healthcare professionals, and local authority services can work with you, often through an Education, Health and Care Plan (EHCP), to map out long-term goals.
\nHealthcare transition: From paediatric to adult care \nOne of the most significant changes is the move from paediatric to adult healthcare. After years of building relationships with familiar doctors and therapists, many families find the adult NHS system less joined-up and sometimes more difficult to navigate.
\n \nCreating a clear medical summary. Listing treatments, therapies, medications, and providers—can be invaluable. \nEncourage self-management. Encouraging your son or daughter to take on small responsibilities, such as preparing questions for appointments. This can also help them build confidence in managing their health. \nBuild a new adult care team. This might include neurologists, orthopaedic specialists, rehabilitation therapists, mental health professionals, and GPs as the central coordinator. \nAnnual multidisciplinary reviews. As recommended by NICE, help monitor progress and address any new concerns. \nAccessibility and advocacy. Work with NHS providers to ensure services are inclusive and adapt appointment structures when needed. \n \n
Building life skills & independent living foundations \n
Beyond health, developing everyday life skills is crucial. Not every young adult with CP will live independently, but all benefit from practising tasks that foster confidence and autonomy.
\n
\nDaily living skills : cooking, cleaning, laundry, or personal care (adapted as needed). \nMoney management : opening a bank account, understanding budgeting, and using disability-related financial support such as Personal Independence Payment (PIP). \nSocial skills : encourage friendships, hobbies, and joining community or peer networks to build confidence. \nTransport & mobility : explore adapted driving, motability schemes, or accessible public transport to foster independence. \n \n
\n
Education, employment & vocational planning \n
Parents play a key role in exploring meaningful next steps:
\n
\nTransition planning through school. EHCPs should cover preparation for further education, training, or employment. \nFurther education and training. Colleges and universities offer support through disability services and the Disabled Students’ Allowance (DSA). \nEmployment pathways. Explore supported internships, apprenticeships, or workplace adjustments through the Equality Act 2010. \nFinancial supports. Families can explore Carer’s Allowance, Universal Credit (if eligible), and long-term options like deputyship or lasting power of attorney if decision-making support is needed. \n \n
Addressing gaps & empowering your child \n
Young people with CP often face gaps in the system, such as limited adult specialists or lack of joined-up care. Families can help by:
\n
\nStarting transition planning early with paediatric teams and schools. \nConnecting with a transition coordinator, social worker, or case manager where available. \nMeeting adult teams before the official handover. \nAdvocating for an individualised pathway based on your child’s strengths and goals. \n \n
Emotional transition: Letting go while staying involved \n
This stage is emotionally charged—for your child and for you.
\n
\nIt’s natural to feel worried, sad, or even relieved as your role evolves from primary carer to coach. \nEvery young person’s path is different—some thrive in independence; others need more ongoing support. \nEncourage open conversations about hopes, fears, and future goals. \nStay connected: provide guidance with logistics and benefits but allow your child to develop their own voice and choices. \n \n
Ultimately, the transition to adulthood is not a single event but a gradual process—one that weaves together independence, support, and identity. With thoughtful preparation, starting in the teenage years, families can provide continuity of care, nurture essential life skills, and open up opportunities for education, employment, and meaningful participation in society.
\n
Most importantly, it is about walking alongside your child as they step into adulthood—supporting them to build a life that reflects their strengths and aspirations; while knowing they are never alone on the journey.
\n
Useful UK resources for families: \n
\n
\n
","rss_summary":"
A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
","rss_body":"
A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
\n
In this article, you’ll read about: - Start early – Plan ahead - Healthcare transition: From paediatric to adult care - Building life skills & independent living foundations - Education, employment & vocational planning - Addressing gaps & empowering your child - Emotional transition: Letting go while staying involved \n
Start early – Plan ahead \n
Transitions do not happen all at once. They begin long before the eighteenth birthday. Many families find it helpful to start considering the future when their child is around fourteen. This early preparation allows time to address healthcare, education, social participation, and independence gradually. Schools, healthcare professionals, and local authority services can work with you, often through an Education, Health and Care Plan (EHCP), to map out long-term goals.
\n
Healthcare transition: From paediatric to adult care \n
One of the most significant changes is the move from paediatric to adult healthcare. After years of building relationships with familiar doctors and therapists, many families find the adult NHS system less joined-up and sometimes more difficult to navigate.
\n
\nCreating a clear medical summary. Listing treatments, therapies, medications, and providers—can be invaluable. \nEncourage self-management. Encouraging your son or daughter to take on small responsibilities, such as preparing questions for appointments. This can also help them build confidence in managing their health. \nBuild a new adult care team. This might include neurologists, orthopaedic specialists, rehabilitation therapists, mental health professionals, and GPs as the central coordinator. \nAnnual multidisciplinary reviews. As recommended by NICE, help monitor progress and address any new concerns. \nAccessibility and advocacy. Work with NHS providers to ensure services are inclusive and adapt appointment structures when needed. \n \n
Building life skills & independent living foundations \n
Beyond health, developing everyday life skills is crucial. Not every young adult with CP will live independently, but all benefit from practising tasks that foster confidence and autonomy.
\n
\nDaily living skills : cooking, cleaning, laundry, or personal care (adapted as needed). \nMoney management : opening a bank account, understanding budgeting, and using disability-related financial support such as Personal Independence Payment (PIP). \nSocial skills : encourage friendships, hobbies, and joining community or peer networks to build confidence. \nTransport & mobility : explore adapted driving, motability schemes, or accessible public transport to foster independence. \n \n
\n
Education, employment & vocational planning \n
Parents play a key role in exploring meaningful next steps:
\n
\nTransition planning through school. EHCPs should cover preparation for further education, training, or employment. \nFurther education and training. Colleges and universities offer support through disability services and the Disabled Students’ Allowance (DSA). \nEmployment pathways. Explore supported internships, apprenticeships, or workplace adjustments through the Equality Act 2010. \nFinancial supports. Families can explore Carer’s Allowance, Universal Credit (if eligible), and long-term options like deputyship or lasting power of attorney if decision-making support is needed. \n \n
Addressing gaps & empowering your child \n
Young people with CP often face gaps in the system, such as limited adult specialists or lack of joined-up care. Families can help by:
\n
\nStarting transition planning early with paediatric teams and schools. \nConnecting with a transition coordinator, social worker, or case manager where available. \nMeeting adult teams before the official handover. \nAdvocating for an individualised pathway based on your child’s strengths and goals. \n \n
Emotional transition: Letting go while staying involved \n
This stage is emotionally charged—for your child and for you.
\n
\nIt’s natural to feel worried, sad, or even relieved as your role evolves from primary carer to coach. \nEvery young person’s path is different—some thrive in independence; others need more ongoing support. \nEncourage open conversations about hopes, fears, and future goals. \nStay connected: provide guidance with logistics and benefits but allow your child to develop their own voice and choices. \n \n
Ultimately, the transition to adulthood is not a single event but a gradual process—one that weaves together independence, support, and identity. With thoughtful preparation, starting in the teenage years, families can provide continuity of care, nurture essential life skills, and open up opportunities for education, employment, and meaningful participation in society.
\n
Most importantly, it is about walking alongside your child as they step into adulthood—supporting them to build a life that reflects their strengths and aspirations; while knowing they are never alone on the journey.
\n
Useful UK resources for families: \n
\n
\n
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A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
\n
In this article, you’ll read about: - Start early – Plan ahead - Healthcare transition: From paediatric to adult care - Building life skills & independent living foundations - Education, employment & vocational planning - Addressing gaps & empowering your child - Emotional transition: Letting go while staying involved \n
Start early – Plan ahead \n
Transitions do not happen all at once. They begin long before the eighteenth birthday. Many families find it helpful to start considering the future when their child is around fourteen. This early preparation allows time to address healthcare, education, social participation, and independence gradually. Schools, healthcare professionals, and local authority services can work with you, often through an Education, Health and Care Plan (EHCP), to map out long-term goals.
\n
Healthcare transition: From paediatric to adult care \n
One of the most significant changes is the move from paediatric to adult healthcare. After years of building relationships with familiar doctors and therapists, many families find the adult NHS system less joined-up and sometimes more difficult to navigate.
\n
\nCreating a clear medical summary. Listing treatments, therapies, medications, and providers—can be invaluable. \nEncourage self-management. Encouraging your son or daughter to take on small responsibilities, such as preparing questions for appointments. This can also help them build confidence in managing their health. \nBuild a new adult care team. This might include neurologists, orthopaedic specialists, rehabilitation therapists, mental health professionals, and GPs as the central coordinator. \nAnnual multidisciplinary reviews. As recommended by NICE, help monitor progress and address any new concerns. \nAccessibility and advocacy. Work with NHS providers to ensure services are inclusive and adapt appointment structures when needed. \n \n
Building life skills & independent living foundations \n
Beyond health, developing everyday life skills is crucial. Not every young adult with CP will live independently, but all benefit from practising tasks that foster confidence and autonomy.
\n
\nDaily living skills : cooking, cleaning, laundry, or personal care (adapted as needed). \nMoney management : opening a bank account, understanding budgeting, and using disability-related financial support such as Personal Independence Payment (PIP). \nSocial skills : encourage friendships, hobbies, and joining community or peer networks to build confidence. \nTransport & mobility : explore adapted driving, motability schemes, or accessible public transport to foster independence. \n \n
\n
Education, employment & vocational planning \n
Parents play a key role in exploring meaningful next steps:
\n
\nTransition planning through school. EHCPs should cover preparation for further education, training, or employment. \nFurther education and training. Colleges and universities offer support through disability services and the Disabled Students’ Allowance (DSA). \nEmployment pathways. Explore supported internships, apprenticeships, or workplace adjustments through the Equality Act 2010. \nFinancial supports. Families can explore Carer’s Allowance, Universal Credit (if eligible), and long-term options like deputyship or lasting power of attorney if decision-making support is needed. \n \n
Addressing gaps & empowering your child \n
Young people with CP often face gaps in the system, such as limited adult specialists or lack of joined-up care. Families can help by:
\n
\nStarting transition planning early with paediatric teams and schools. \nConnecting with a transition coordinator, social worker, or case manager where available. \nMeeting adult teams before the official handover. \nAdvocating for an individualised pathway based on your child’s strengths and goals. \n \n
Emotional transition: Letting go while staying involved \n
This stage is emotionally charged—for your child and for you.
\n
\nIt’s natural to feel worried, sad, or even relieved as your role evolves from primary carer to coach. \nEvery young person’s path is different—some thrive in independence; others need more ongoing support. \nEncourage open conversations about hopes, fears, and future goals. \nStay connected: provide guidance with logistics and benefits but allow your child to develop their own voice and choices. \n \n
Ultimately, the transition to adulthood is not a single event but a gradual process—one that weaves together independence, support, and identity. With thoughtful preparation, starting in the teenage years, families can provide continuity of care, nurture essential life skills, and open up opportunities for education, employment, and meaningful participation in society.
\n
Most importantly, it is about walking alongside your child as they step into adulthood—supporting them to build a life that reflects their strengths and aspirations; while knowing they are never alone on the journey.
\n
Useful UK resources for families: \n
\n
\n
","postBodyRss":"
A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
\n
In this article, you’ll read about: - Start early – Plan ahead - Healthcare transition: From paediatric to adult care - Building life skills & independent living foundations - Education, employment & vocational planning - Addressing gaps & empowering your child - Emotional transition: Letting go while staying involved \n
Start early – Plan ahead \n
Transitions do not happen all at once. They begin long before the eighteenth birthday. Many families find it helpful to start considering the future when their child is around fourteen. This early preparation allows time to address healthcare, education, social participation, and independence gradually. Schools, healthcare professionals, and local authority services can work with you, often through an Education, Health and Care Plan (EHCP), to map out long-term goals.
\n
Healthcare transition: From paediatric to adult care \n
One of the most significant changes is the move from paediatric to adult healthcare. After years of building relationships with familiar doctors and therapists, many families find the adult NHS system less joined-up and sometimes more difficult to navigate.
\n
\nCreating a clear medical summary. Listing treatments, therapies, medications, and providers—can be invaluable. \nEncourage self-management. Encouraging your son or daughter to take on small responsibilities, such as preparing questions for appointments. This can also help them build confidence in managing their health. \nBuild a new adult care team. This might include neurologists, orthopaedic specialists, rehabilitation therapists, mental health professionals, and GPs as the central coordinator. \nAnnual multidisciplinary reviews. As recommended by NICE, help monitor progress and address any new concerns. \nAccessibility and advocacy. Work with NHS providers to ensure services are inclusive and adapt appointment structures when needed. \n \n
Building life skills & independent living foundations \n
Beyond health, developing everyday life skills is crucial. Not every young adult with CP will live independently, but all benefit from practising tasks that foster confidence and autonomy.
\n
\nDaily living skills : cooking, cleaning, laundry, or personal care (adapted as needed). \nMoney management : opening a bank account, understanding budgeting, and using disability-related financial support such as Personal Independence Payment (PIP). \nSocial skills : encourage friendships, hobbies, and joining community or peer networks to build confidence. \nTransport & mobility : explore adapted driving, motability schemes, or accessible public transport to foster independence. \n \n
\n
Education, employment & vocational planning \n
Parents play a key role in exploring meaningful next steps:
\n
\nTransition planning through school. EHCPs should cover preparation for further education, training, or employment. \nFurther education and training. Colleges and universities offer support through disability services and the Disabled Students’ Allowance (DSA). \nEmployment pathways. Explore supported internships, apprenticeships, or workplace adjustments through the Equality Act 2010. \nFinancial supports. Families can explore Carer’s Allowance, Universal Credit (if eligible), and long-term options like deputyship or lasting power of attorney if decision-making support is needed. \n \n
Addressing gaps & empowering your child \n
Young people with CP often face gaps in the system, such as limited adult specialists or lack of joined-up care. Families can help by:
\n
\nStarting transition planning early with paediatric teams and schools. \nConnecting with a transition coordinator, social worker, or case manager where available. \nMeeting adult teams before the official handover. \nAdvocating for an individualised pathway based on your child’s strengths and goals. \n \n
Emotional transition: Letting go while staying involved \n
This stage is emotionally charged—for your child and for you.
\n
\nIt’s natural to feel worried, sad, or even relieved as your role evolves from primary carer to coach. \nEvery young person’s path is different—some thrive in independence; others need more ongoing support. \nEncourage open conversations about hopes, fears, and future goals. \nStay connected: provide guidance with logistics and benefits but allow your child to develop their own voice and choices. \n \n
Ultimately, the transition to adulthood is not a single event but a gradual process—one that weaves together independence, support, and identity. With thoughtful preparation, starting in the teenage years, families can provide continuity of care, nurture essential life skills, and open up opportunities for education, employment, and meaningful participation in society.
\n
Most importantly, it is about walking alongside your child as they step into adulthood—supporting them to build a life that reflects their strengths and aspirations; while knowing they are never alone on the journey.
\n
Useful UK resources for families: \n
\n
\n
","postEmailContent":"
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A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
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A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
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A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
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A child with cerebral palsy reaching adulthood marks a proud milestone of growth and change. For families, it’s a complex journey toward independence and advocacy. With early planning, preparation, and strong support, parents can empower their child to build confidence and thrive in adulthood.
\n
In this article, you’ll read about: - Start early – Plan ahead - Healthcare transition: From paediatric to adult care - Building life skills & independent living foundations - Education, employment & vocational planning - Addressing gaps & empowering your child - Emotional transition: Letting go while staying involved \n
Start early – Plan ahead \n
Transitions do not happen all at once. They begin long before the eighteenth birthday. Many families find it helpful to start considering the future when their child is around fourteen. This early preparation allows time to address healthcare, education, social participation, and independence gradually. Schools, healthcare professionals, and local authority services can work with you, often through an Education, Health and Care Plan (EHCP), to map out long-term goals.
\n
Healthcare transition: From paediatric to adult care \n
One of the most significant changes is the move from paediatric to adult healthcare. After years of building relationships with familiar doctors and therapists, many families find the adult NHS system less joined-up and sometimes more difficult to navigate.
\n
\nCreating a clear medical summary. Listing treatments, therapies, medications, and providers—can be invaluable. \nEncourage self-management. Encouraging your son or daughter to take on small responsibilities, such as preparing questions for appointments. This can also help them build confidence in managing their health. \nBuild a new adult care team. This might include neurologists, orthopaedic specialists, rehabilitation therapists, mental health professionals, and GPs as the central coordinator. \nAnnual multidisciplinary reviews. As recommended by NICE, help monitor progress and address any new concerns. \nAccessibility and advocacy. Work with NHS providers to ensure services are inclusive and adapt appointment structures when needed. \n \n
Building life skills & independent living foundations \n
Beyond health, developing everyday life skills is crucial. Not every young adult with CP will live independently, but all benefit from practising tasks that foster confidence and autonomy.
\n
\nDaily living skills : cooking, cleaning, laundry, or personal care (adapted as needed). \nMoney management : opening a bank account, understanding budgeting, and using disability-related financial support such as Personal Independence Payment (PIP). \nSocial skills : encourage friendships, hobbies, and joining community or peer networks to build confidence. \nTransport & mobility : explore adapted driving, motability schemes, or accessible public transport to foster independence. \n \n
\n
Education, employment & vocational planning \n
Parents play a key role in exploring meaningful next steps:
\n
\nTransition planning through school. EHCPs should cover preparation for further education, training, or employment. \nFurther education and training. Colleges and universities offer support through disability services and the Disabled Students’ Allowance (DSA). \nEmployment pathways. Explore supported internships, apprenticeships, or workplace adjustments through the Equality Act 2010. \nFinancial supports. Families can explore Carer’s Allowance, Universal Credit (if eligible), and long-term options like deputyship or lasting power of attorney if decision-making support is needed. \n \n
Addressing gaps & empowering your child \n
Young people with CP often face gaps in the system, such as limited adult specialists or lack of joined-up care. Families can help by:
\n
\nStarting transition planning early with paediatric teams and schools. \nConnecting with a transition coordinator, social worker, or case manager where available. \nMeeting adult teams before the official handover. \nAdvocating for an individualised pathway based on your child’s strengths and goals. \n \n
Emotional transition: Letting go while staying involved \n
This stage is emotionally charged—for your child and for you.
\n
\nIt’s natural to feel worried, sad, or even relieved as your role evolves from primary carer to coach. \nEvery young person’s path is different—some thrive in independence; others need more ongoing support. \nEncourage open conversations about hopes, fears, and future goals. \nStay connected: provide guidance with logistics and benefits but allow your child to develop their own voice and choices. \n \n
Ultimately, the transition to adulthood is not a single event but a gradual process—one that weaves together independence, support, and identity. With thoughtful preparation, starting in the teenage years, families can provide continuity of care, nurture essential life skills, and open up opportunities for education, employment, and meaningful participation in society.
\n
Most importantly, it is about walking alongside your child as they step into adulthood—supporting them to build a life that reflects their strengths and aspirations; while knowing they are never alone on the journey.
\n
Useful UK resources for families: \n
\n
\n
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Oct 8, 2025 Navigating the transition to adulthood for your child with CP
Support your child with cerebral palsy into adulthood. Practical advice on health, life skills, education, work, and independence.
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Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
\nIn this article, you’ll read about: - This is Ludvig - His first steps in the Innowalk - Through changes and surgeries - Innowalk as a natural part of daily life - The Importance of movement for well-being - The Future – Innowalk moving forward \nThis is Ludvig \nLudvig is a 15-year-old boy full of humour and joy. He loves music and books, preferably exciting stories that give him a little extra thrill. He has two passions that stand out as everyday joys: coffee and cheese puffs. Just mentioning them brings out a big smile. He is also a real enthusiast when it comes to weather and outdoor activities. Soon, the peak season for his favourite activity will begin: skiing. With the wind in his face and snow swirling around, Ludvig enjoys life to the fullest. “The worse the weather, the bigger the smile,” says his mother, Susanne, with a laugh, sending him a warm glance. He responds with a wide, agreeing smile. Ludvig has spastic bilateral cerebral palsy GMFCS level V, therapy-resistant epilepsy, a baclofen pump, gastrostomy, and colostomy. But despite these challenges, Innowalk has always been there as reliable support, even during difficult times of change. Its adaptability is what makes it such a significant part of his everyday life.
\nThe First Steps in the Innowalk \nLet’s rewind ten years. The first time Ludvig tried the Innowalk, he was only five. The family had fought hard to get the opportunity, and eventually they were allowed to test the device at home. The effect was immediate. “He was more talkative than usual at first, almost as if his body had found a new way to express itself,” Susanne recalls. The family also started measuring: hand and foot temperature, spasticity, digestion, sleep, and heart rate.
\n
\n
\nThe results were clear. His hands and feet got warmer, spasticity decreased, his sleep improved, and he was more alert during the day. The biggest difference was in digestion – medicines that had previously regulated his bowels could be completely discontinued. And most importantly: Ludvig was happy. He enjoyed the movement and could even fall asleep in the machine – completely calm and content. When the message arrived right before Christmas that they could keep the Innowalk, the joy was overwhelming. “It was the best Christmas present ever,” says Susanne.
\nThrough Changes and Surgeries \nA decade is a long time, especially in a child’s life. During this period, Ludvig has grown, and his body has changed. The journey hasn’t been easy. He has undergone scoliosis surgery, dealt with hip problems, and received a baclofen pump, gastrostomy, and colostomy. Each has been a major strain, and everyday life has sometimes been turned upside down. But throughout all these changes, one thing has never failed – the Innowalk. Time and again, it has been adapted to Ludvig’s body, making it possible for him to continue using it regardless of the challenges he faced. “That’s what’s so amazing. Despite everything his body has been through – scoliosis surgery, hip problems, pumps, stomas – the Innowalk has never been an obstacle. It has always adapted,” says Susanne. This is precisely why the Innowalk is so unique in Ludvig’s life. Where other aids have had to be replaced, the Innowalk has instead grown with him, been adapted to his changing needs, and remained a faithful companion.
\nInnowalk as a Natural Part of Daily Life \nFor ten years, Innowalk has been a natural part of Ludvig’s daily routine, as natural as breakfast or morning coffee. At least five days a week, he uses it, and each session lasts about an hour. Often, he trains right after school, when both body and mind need to recharge after the day. There’s room for variation and creativity. While his feet pedal rhythmically, Ludvig listens to his favourite music, watches a film, or enjoys an exciting audiobook. It’s a double benefit: his body gets movement and stimulation, while his mind gets rest, joy, and entertainment. “It’s like a mental breathing space,” says Susanne. “He can rest within the movement after a long day, and at the same time be active in his own way.” No matter his condition or challenges, the machine is always ready to meet his needs.
\nThe Importance of Movement for Well-being \nFor Ludvig, Innowalk means more than just physical activity. It’s pure joy of movement. Some days he chooses a calm pace, other days he pushes himself with intervals. But he shines the most when the pace is high, and the steps are fast.
\n
\n\nWhen he sprints in the Innowalk, his smile is enormous. You can see his whole body enjoying it, says Susanne.
\n \n
\nIf Ludvig can’t use the Innowalk, for example during hospital stays, the effects show quickly. His spasticity increases, and his body grows restless. But as soon as he can use the machine again, he sighs with relief – as if his whole body says, “finally.” In a daily life where so much must be planned and adapted, the Innowalk becomes a valuable sanctuary. Here, the body can stretch and be active on its own terms, while the mood is noticeably lifted. Spasticity decreases, digestion improves, sleep becomes deeper – and most importantly: Ludvig experiences a better quality of life.
\nThe Future – Innowalk Moving Forward \nIt has been ten years since Ludvig took his first steps in the Innowalk. A decade later, the device is still just as invaluable – and the journey is far from over. Innowalk is not only part of his history but also a natural part of his future as the next chapter begins. Secondary school is approaching, with new routines, new environments, and practical questions about housing and daily life. Much is uncertain – but one thing is sure: the Innowalk will join him on the journey. “Innowalk has been with him from when he was a five-year-old boy to now, when he’s about to turn sixteen. It’s been there through all the changes and challenges we’ve faced. To imagine life without Innowalk is simply unthinkable. We won’t even try,” says Susanne with a smile. We want to extend a warm thank you to Ludvig and his mother, Susanne, for sharing their daily life and experiences from ten years with Innowalk. Their journey shows how invaluable an assistive device can be – not just in the moment, but also as a source of joy year after year.
\n
\n
","post_summary":"Ludvig was only five years old when he took his first steps in the Innowalk. Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
","blog_post_schedule_task_uid":null,"blog_publish_to_social_media_task":"DONE_NOT_SENT","blog_publish_instant_email_task_uid":"DONE","blog_publish_instant_email_campaign_id":null,"blog_publish_instant_email_retry_count":null,"rss_body":"Ludvig was only five years old when he took his first steps in the Innowalk. Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
\nIn this article, you’ll read about: - This is Ludvig - His first steps in the Innowalk - Through changes and surgeries - Innowalk as a natural part of daily life - The Importance of movement for well-being - The Future – Innowalk moving forward \nThis is Ludvig \nLudvig is a 15-year-old boy full of humour and joy. He loves music and books, preferably exciting stories that give him a little extra thrill. He has two passions that stand out as everyday joys: coffee and cheese puffs. Just mentioning them brings out a big smile. He is also a real enthusiast when it comes to weather and outdoor activities. Soon, the peak season for his favourite activity will begin: skiing. With the wind in his face and snow swirling around, Ludvig enjoys life to the fullest. “The worse the weather, the bigger the smile,” says his mother, Susanne, with a laugh, sending him a warm glance. He responds with a wide, agreeing smile. Ludvig has spastic bilateral cerebral palsy GMFCS level V, therapy-resistant epilepsy, a baclofen pump, gastrostomy, and colostomy. But despite these challenges, Innowalk has always been there as reliable support, even during difficult times of change. Its adaptability is what makes it such a significant part of his everyday life.
\nThe First Steps in the Innowalk \nLet’s rewind ten years. The first time Ludvig tried the Innowalk, he was only five. The family had fought hard to get the opportunity, and eventually they were allowed to test the device at home. The effect was immediate. “He was more talkative than usual at first, almost as if his body had found a new way to express itself,” Susanne recalls. The family also started measuring: hand and foot temperature, spasticity, digestion, sleep, and heart rate.
\n
\n
\nThe results were clear. His hands and feet got warmer, spasticity decreased, his sleep improved, and he was more alert during the day. The biggest difference was in digestion – medicines that had previously regulated his bowels could be completely discontinued. And most importantly: Ludvig was happy. He enjoyed the movement and could even fall asleep in the machine – completely calm and content. When the message arrived right before Christmas that they could keep the Innowalk, the joy was overwhelming. “It was the best Christmas present ever,” says Susanne.
\nThrough Changes and Surgeries \nA decade is a long time, especially in a child’s life. During this period, Ludvig has grown, and his body has changed. The journey hasn’t been easy. He has undergone scoliosis surgery, dealt with hip problems, and received a baclofen pump, gastrostomy, and colostomy. Each has been a major strain, and everyday life has sometimes been turned upside down. But throughout all these changes, one thing has never failed – the Innowalk. Time and again, it has been adapted to Ludvig’s body, making it possible for him to continue using it regardless of the challenges he faced. “That’s what’s so amazing. Despite everything his body has been through – scoliosis surgery, hip problems, pumps, stomas – the Innowalk has never been an obstacle. It has always adapted,” says Susanne. This is precisely why the Innowalk is so unique in Ludvig’s life. Where other aids have had to be replaced, the Innowalk has instead grown with him, been adapted to his changing needs, and remained a faithful companion.
\nInnowalk as a Natural Part of Daily Life \nFor ten years, Innowalk has been a natural part of Ludvig’s daily routine, as natural as breakfast or morning coffee. At least five days a week, he uses it, and each session lasts about an hour. Often, he trains right after school, when both body and mind need to recharge after the day. There’s room for variation and creativity. While his feet pedal rhythmically, Ludvig listens to his favourite music, watches a film, or enjoys an exciting audiobook. It’s a double benefit: his body gets movement and stimulation, while his mind gets rest, joy, and entertainment. “It’s like a mental breathing space,” says Susanne. “He can rest within the movement after a long day, and at the same time be active in his own way.” No matter his condition or challenges, the machine is always ready to meet his needs.
\nThe Importance of Movement for Well-being \nFor Ludvig, Innowalk means more than just physical activity. It’s pure joy of movement. Some days he chooses a calm pace, other days he pushes himself with intervals. But he shines the most when the pace is high, and the steps are fast.
\n
\n\nWhen he sprints in the Innowalk, his smile is enormous. You can see his whole body enjoying it, says Susanne.
\n \n
\nIf Ludvig can’t use the Innowalk, for example during hospital stays, the effects show quickly. His spasticity increases, and his body grows restless. But as soon as he can use the machine again, he sighs with relief – as if his whole body says, “finally.” In a daily life where so much must be planned and adapted, the Innowalk becomes a valuable sanctuary. Here, the body can stretch and be active on its own terms, while the mood is noticeably lifted. Spasticity decreases, digestion improves, sleep becomes deeper – and most importantly: Ludvig experiences a better quality of life.
\nThe Future – Innowalk Moving Forward \nIt has been ten years since Ludvig took his first steps in the Innowalk. A decade later, the device is still just as invaluable – and the journey is far from over. Innowalk is not only part of his history but also a natural part of his future as the next chapter begins. Secondary school is approaching, with new routines, new environments, and practical questions about housing and daily life. Much is uncertain – but one thing is sure: the Innowalk will join him on the journey. “Innowalk has been with him from when he was a five-year-old boy to now, when he’s about to turn sixteen. It’s been there through all the changes and challenges we’ve faced. To imagine life without Innowalk is simply unthinkable. We won’t even try,” says Susanne with a smile. We want to extend a warm thank you to Ludvig and his mother, Susanne, for sharing their daily life and experiences from ten years with Innowalk. Their journey shows how invaluable an assistive device can be – not just in the moment, but also as a source of joy year after year.
\n
\n
","rss_summary":"Ludvig was only five years old when he took his first steps in the Innowalk. Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
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Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
\nIn this article, you’ll read about: - This is Ludvig - His first steps in the Innowalk - Through changes and surgeries - Innowalk as a natural part of daily life - The Importance of movement for well-being - The Future – Innowalk moving forward \nThis is Ludvig \nLudvig is a 15-year-old boy full of humour and joy. He loves music and books, preferably exciting stories that give him a little extra thrill. He has two passions that stand out as everyday joys: coffee and cheese puffs. Just mentioning them brings out a big smile. He is also a real enthusiast when it comes to weather and outdoor activities. Soon, the peak season for his favourite activity will begin: skiing. With the wind in his face and snow swirling around, Ludvig enjoys life to the fullest. “The worse the weather, the bigger the smile,” says his mother, Susanne, with a laugh, sending him a warm glance. He responds with a wide, agreeing smile. Ludvig has spastic bilateral cerebral palsy GMFCS level V, therapy-resistant epilepsy, a baclofen pump, gastrostomy, and colostomy. But despite these challenges, Innowalk has always been there as reliable support, even during difficult times of change. Its adaptability is what makes it such a significant part of his everyday life.
\nThe First Steps in the Innowalk \nLet’s rewind ten years. The first time Ludvig tried the Innowalk, he was only five. The family had fought hard to get the opportunity, and eventually they were allowed to test the device at home. The effect was immediate. “He was more talkative than usual at first, almost as if his body had found a new way to express itself,” Susanne recalls. The family also started measuring: hand and foot temperature, spasticity, digestion, sleep, and heart rate.
\n
\n
\nThe results were clear. His hands and feet got warmer, spasticity decreased, his sleep improved, and he was more alert during the day. The biggest difference was in digestion – medicines that had previously regulated his bowels could be completely discontinued. And most importantly: Ludvig was happy. He enjoyed the movement and could even fall asleep in the machine – completely calm and content. When the message arrived right before Christmas that they could keep the Innowalk, the joy was overwhelming. “It was the best Christmas present ever,” says Susanne.
\nThrough Changes and Surgeries \nA decade is a long time, especially in a child’s life. During this period, Ludvig has grown, and his body has changed. The journey hasn’t been easy. He has undergone scoliosis surgery, dealt with hip problems, and received a baclofen pump, gastrostomy, and colostomy. Each has been a major strain, and everyday life has sometimes been turned upside down. But throughout all these changes, one thing has never failed – the Innowalk. Time and again, it has been adapted to Ludvig’s body, making it possible for him to continue using it regardless of the challenges he faced. “That’s what’s so amazing. Despite everything his body has been through – scoliosis surgery, hip problems, pumps, stomas – the Innowalk has never been an obstacle. It has always adapted,” says Susanne. This is precisely why the Innowalk is so unique in Ludvig’s life. Where other aids have had to be replaced, the Innowalk has instead grown with him, been adapted to his changing needs, and remained a faithful companion.
\nInnowalk as a Natural Part of Daily Life \nFor ten years, Innowalk has been a natural part of Ludvig’s daily routine, as natural as breakfast or morning coffee. At least five days a week, he uses it, and each session lasts about an hour. Often, he trains right after school, when both body and mind need to recharge after the day. There’s room for variation and creativity. While his feet pedal rhythmically, Ludvig listens to his favourite music, watches a film, or enjoys an exciting audiobook. It’s a double benefit: his body gets movement and stimulation, while his mind gets rest, joy, and entertainment. “It’s like a mental breathing space,” says Susanne. “He can rest within the movement after a long day, and at the same time be active in his own way.” No matter his condition or challenges, the machine is always ready to meet his needs.
\nThe Importance of Movement for Well-being \nFor Ludvig, Innowalk means more than just physical activity. It’s pure joy of movement. Some days he chooses a calm pace, other days he pushes himself with intervals. But he shines the most when the pace is high, and the steps are fast.
\n
\n\nWhen he sprints in the Innowalk, his smile is enormous. You can see his whole body enjoying it, says Susanne.
\n \n
\nIf Ludvig can’t use the Innowalk, for example during hospital stays, the effects show quickly. His spasticity increases, and his body grows restless. But as soon as he can use the machine again, he sighs with relief – as if his whole body says, “finally.” In a daily life where so much must be planned and adapted, the Innowalk becomes a valuable sanctuary. Here, the body can stretch and be active on its own terms, while the mood is noticeably lifted. Spasticity decreases, digestion improves, sleep becomes deeper – and most importantly: Ludvig experiences a better quality of life.
\nThe Future – Innowalk Moving Forward \nIt has been ten years since Ludvig took his first steps in the Innowalk. A decade later, the device is still just as invaluable – and the journey is far from over. Innowalk is not only part of his history but also a natural part of his future as the next chapter begins. Secondary school is approaching, with new routines, new environments, and practical questions about housing and daily life. Much is uncertain – but one thing is sure: the Innowalk will join him on the journey. “Innowalk has been with him from when he was a five-year-old boy to now, when he’s about to turn sixteen. It’s been there through all the changes and challenges we’ve faced. To imagine life without Innowalk is simply unthinkable. We won’t even try,” says Susanne with a smile. We want to extend a warm thank you to Ludvig and his mother, Susanne, for sharing their daily life and experiences from ten years with Innowalk. Their journey shows how invaluable an assistive device can be – not just in the moment, but also as a source of joy year after year.
\n
\n
","postBodyRss":"Ludvig was only five years old when he took his first steps in the Innowalk. Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
\nIn this article, you’ll read about: - This is Ludvig - His first steps in the Innowalk - Through changes and surgeries - Innowalk as a natural part of daily life - The Importance of movement for well-being - The Future – Innowalk moving forward \nThis is Ludvig \nLudvig is a 15-year-old boy full of humour and joy. He loves music and books, preferably exciting stories that give him a little extra thrill. He has two passions that stand out as everyday joys: coffee and cheese puffs. Just mentioning them brings out a big smile. He is also a real enthusiast when it comes to weather and outdoor activities. Soon, the peak season for his favourite activity will begin: skiing. With the wind in his face and snow swirling around, Ludvig enjoys life to the fullest. “The worse the weather, the bigger the smile,” says his mother, Susanne, with a laugh, sending him a warm glance. He responds with a wide, agreeing smile. Ludvig has spastic bilateral cerebral palsy GMFCS level V, therapy-resistant epilepsy, a baclofen pump, gastrostomy, and colostomy. But despite these challenges, Innowalk has always been there as reliable support, even during difficult times of change. Its adaptability is what makes it such a significant part of his everyday life.
\nThe First Steps in the Innowalk \nLet’s rewind ten years. The first time Ludvig tried the Innowalk, he was only five. The family had fought hard to get the opportunity, and eventually they were allowed to test the device at home. The effect was immediate. “He was more talkative than usual at first, almost as if his body had found a new way to express itself,” Susanne recalls. The family also started measuring: hand and foot temperature, spasticity, digestion, sleep, and heart rate.
\n
\n
\nThe results were clear. His hands and feet got warmer, spasticity decreased, his sleep improved, and he was more alert during the day. The biggest difference was in digestion – medicines that had previously regulated his bowels could be completely discontinued. And most importantly: Ludvig was happy. He enjoyed the movement and could even fall asleep in the machine – completely calm and content. When the message arrived right before Christmas that they could keep the Innowalk, the joy was overwhelming. “It was the best Christmas present ever,” says Susanne.
\nThrough Changes and Surgeries \nA decade is a long time, especially in a child’s life. During this period, Ludvig has grown, and his body has changed. The journey hasn’t been easy. He has undergone scoliosis surgery, dealt with hip problems, and received a baclofen pump, gastrostomy, and colostomy. Each has been a major strain, and everyday life has sometimes been turned upside down. But throughout all these changes, one thing has never failed – the Innowalk. Time and again, it has been adapted to Ludvig’s body, making it possible for him to continue using it regardless of the challenges he faced. “That’s what’s so amazing. Despite everything his body has been through – scoliosis surgery, hip problems, pumps, stomas – the Innowalk has never been an obstacle. It has always adapted,” says Susanne. This is precisely why the Innowalk is so unique in Ludvig’s life. Where other aids have had to be replaced, the Innowalk has instead grown with him, been adapted to his changing needs, and remained a faithful companion.
\nInnowalk as a Natural Part of Daily Life \nFor ten years, Innowalk has been a natural part of Ludvig’s daily routine, as natural as breakfast or morning coffee. At least five days a week, he uses it, and each session lasts about an hour. Often, he trains right after school, when both body and mind need to recharge after the day. There’s room for variation and creativity. While his feet pedal rhythmically, Ludvig listens to his favourite music, watches a film, or enjoys an exciting audiobook. It’s a double benefit: his body gets movement and stimulation, while his mind gets rest, joy, and entertainment. “It’s like a mental breathing space,” says Susanne. “He can rest within the movement after a long day, and at the same time be active in his own way.” No matter his condition or challenges, the machine is always ready to meet his needs.
\nThe Importance of Movement for Well-being \nFor Ludvig, Innowalk means more than just physical activity. It’s pure joy of movement. Some days he chooses a calm pace, other days he pushes himself with intervals. But he shines the most when the pace is high, and the steps are fast.
\n
\n\nWhen he sprints in the Innowalk, his smile is enormous. You can see his whole body enjoying it, says Susanne.
\n \n
\nIf Ludvig can’t use the Innowalk, for example during hospital stays, the effects show quickly. His spasticity increases, and his body grows restless. But as soon as he can use the machine again, he sighs with relief – as if his whole body says, “finally.” In a daily life where so much must be planned and adapted, the Innowalk becomes a valuable sanctuary. Here, the body can stretch and be active on its own terms, while the mood is noticeably lifted. Spasticity decreases, digestion improves, sleep becomes deeper – and most importantly: Ludvig experiences a better quality of life.
\nThe Future – Innowalk Moving Forward \nIt has been ten years since Ludvig took his first steps in the Innowalk. A decade later, the device is still just as invaluable – and the journey is far from over. Innowalk is not only part of his history but also a natural part of his future as the next chapter begins. Secondary school is approaching, with new routines, new environments, and practical questions about housing and daily life. Much is uncertain – but one thing is sure: the Innowalk will join him on the journey. “Innowalk has been with him from when he was a five-year-old boy to now, when he’s about to turn sixteen. It’s been there through all the changes and challenges we’ve faced. To imagine life without Innowalk is simply unthinkable. We won’t even try,” says Susanne with a smile. We want to extend a warm thank you to Ludvig and his mother, Susanne, for sharing their daily life and experiences from ten years with Innowalk. Their journey shows how invaluable an assistive device can be – not just in the moment, but also as a source of joy year after year.
\n
\n
","postEmailContent":"Ludvig was only five years old when he took his first steps in the Innowalk. Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
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","postSummaryRss":"Ludvig was only five years old when he took his first steps in the Innowalk. Today, ten years later, it is still his most important piece of equipment. Despite surgeries, new diagnoses, and a growing body, the Innowalk has always been adaptable and has become a vital source of movement and joy in his everyday life.
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\nIn this article, you’ll read about: - This is Ludvig - His first steps in the Innowalk - Through changes and surgeries - Innowalk as a natural part of daily life - The Importance of movement for well-being - The Future – Innowalk moving forward \nThis is Ludvig \nLudvig is a 15-year-old boy full of humour and joy. He loves music and books, preferably exciting stories that give him a little extra thrill. He has two passions that stand out as everyday joys: coffee and cheese puffs. Just mentioning them brings out a big smile. He is also a real enthusiast when it comes to weather and outdoor activities. Soon, the peak season for his favourite activity will begin: skiing. With the wind in his face and snow swirling around, Ludvig enjoys life to the fullest. “The worse the weather, the bigger the smile,” says his mother, Susanne, with a laugh, sending him a warm glance. He responds with a wide, agreeing smile. Ludvig has spastic bilateral cerebral palsy GMFCS level V, therapy-resistant epilepsy, a baclofen pump, gastrostomy, and colostomy. But despite these challenges, Innowalk has always been there as reliable support, even during difficult times of change. Its adaptability is what makes it such a significant part of his everyday life.
\nThe First Steps in the Innowalk \nLet’s rewind ten years. The first time Ludvig tried the Innowalk, he was only five. The family had fought hard to get the opportunity, and eventually they were allowed to test the device at home. The effect was immediate. “He was more talkative than usual at first, almost as if his body had found a new way to express itself,” Susanne recalls. The family also started measuring: hand and foot temperature, spasticity, digestion, sleep, and heart rate.
\n
\n
\nThe results were clear. His hands and feet got warmer, spasticity decreased, his sleep improved, and he was more alert during the day. The biggest difference was in digestion – medicines that had previously regulated his bowels could be completely discontinued. And most importantly: Ludvig was happy. He enjoyed the movement and could even fall asleep in the machine – completely calm and content. When the message arrived right before Christmas that they could keep the Innowalk, the joy was overwhelming. “It was the best Christmas present ever,” says Susanne.
\nThrough Changes and Surgeries \nA decade is a long time, especially in a child’s life. During this period, Ludvig has grown, and his body has changed. The journey hasn’t been easy. He has undergone scoliosis surgery, dealt with hip problems, and received a baclofen pump, gastrostomy, and colostomy. Each has been a major strain, and everyday life has sometimes been turned upside down. But throughout all these changes, one thing has never failed – the Innowalk. Time and again, it has been adapted to Ludvig’s body, making it possible for him to continue using it regardless of the challenges he faced. “That’s what’s so amazing. Despite everything his body has been through – scoliosis surgery, hip problems, pumps, stomas – the Innowalk has never been an obstacle. It has always adapted,” says Susanne. This is precisely why the Innowalk is so unique in Ludvig’s life. Where other aids have had to be replaced, the Innowalk has instead grown with him, been adapted to his changing needs, and remained a faithful companion.
\nInnowalk as a Natural Part of Daily Life \nFor ten years, Innowalk has been a natural part of Ludvig’s daily routine, as natural as breakfast or morning coffee. At least five days a week, he uses it, and each session lasts about an hour. Often, he trains right after school, when both body and mind need to recharge after the day. There’s room for variation and creativity. While his feet pedal rhythmically, Ludvig listens to his favourite music, watches a film, or enjoys an exciting audiobook. It’s a double benefit: his body gets movement and stimulation, while his mind gets rest, joy, and entertainment. “It’s like a mental breathing space,” says Susanne. “He can rest within the movement after a long day, and at the same time be active in his own way.” No matter his condition or challenges, the machine is always ready to meet his needs.
\nThe Importance of Movement for Well-being \nFor Ludvig, Innowalk means more than just physical activity. It’s pure joy of movement. Some days he chooses a calm pace, other days he pushes himself with intervals. But he shines the most when the pace is high, and the steps are fast.
\n
\n\nWhen he sprints in the Innowalk, his smile is enormous. You can see his whole body enjoying it, says Susanne.
\n \n
\nIf Ludvig can’t use the Innowalk, for example during hospital stays, the effects show quickly. His spasticity increases, and his body grows restless. But as soon as he can use the machine again, he sighs with relief – as if his whole body says, “finally.” In a daily life where so much must be planned and adapted, the Innowalk becomes a valuable sanctuary. Here, the body can stretch and be active on its own terms, while the mood is noticeably lifted. Spasticity decreases, digestion improves, sleep becomes deeper – and most importantly: Ludvig experiences a better quality of life.
\nThe Future – Innowalk Moving Forward \nIt has been ten years since Ludvig took his first steps in the Innowalk. A decade later, the device is still just as invaluable – and the journey is far from over. Innowalk is not only part of his history but also a natural part of his future as the next chapter begins. Secondary school is approaching, with new routines, new environments, and practical questions about housing and daily life. Much is uncertain – but one thing is sure: the Innowalk will join him on the journey. “Innowalk has been with him from when he was a five-year-old boy to now, when he’s about to turn sixteen. It’s been there through all the changes and challenges we’ve faced. To imagine life without Innowalk is simply unthinkable. We won’t even try,” says Susanne with a smile. We want to extend a warm thank you to Ludvig and his mother, Susanne, for sharing their daily life and experiences from ten years with Innowalk. Their journey shows how invaluable an assistive device can be – not just in the moment, but also as a source of joy year after year.
\n
\n
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Sep 24, 2025 Ten Years with Innowalk – Why the device is invaluable for Ludvig
Ludvig has used the Innowalk for over ten years – a device that gives him movement, security, and joy in everyday life.
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","post_body":"Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\nIn this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \nLooking after mental health \nIf you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\nMental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\nOn top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\nUnfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\nThat’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\nGenerally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\nCommon symptoms of mental health issues \nThe symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\nHere are some common signs to look out for:
\nEmotional signs \n \nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
","rss_summary":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
","rss_body":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
","postBodyRss":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
","postRssSummaryFeaturedImage":"https://2252381.fs1.hubspotusercontent-na1.net/hubfs/2252381/Blog/Featured%20image%20-%20Use%20this/FI_CP%20Depression.jpg","postSummary":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
","postSummaryRss":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
\n
In this article you can learn more about: - Looking after mental health - Common symptoms of mental health issues - Young people with CP are especially vulnerable - Treatment options for mental health - The Importance of seeking help early \n
Looking after mental health \n
If you or someone you care for have cerebral palsy (CP), you probably already know how much energy it takes to manage the physical side of things. But mental health matters just as much—and the two are deeply connected. Living with a long-term condition can increase the risk of anxiety or depression, and when these go untreated, they can also make physical health harder to manage.
\n
Mental health struggles can affect sleep, appetite, energy, and focus. They can leave you feeling demotivated, less likely to keep up healthy habits, or even less inclined to see friends or take care of yourself. Over time, this can make any existing health challenges feel worse.
\n
On top of this, everyday barriers—like difficulties with transport or accessibility—can add extra stress. Missing out on social opportunities or not being able to reach work, services, or appointments can increase feelings of isolation, which in turn affects mental wellbeing.
\n
Unfortunately, it’s not uncommon for doctors, carers, or even people with CP themselves to overlook mental health, or to assume every symptom must be related to CP. But research shows that people with disabilities or long-term health conditions are three to four times more likely to develop depression or anxiety. And this isn’t about how “severe” your CP is—it’s more about stress levels, pain, fatigue, coping strategies, and the support you have around you.
\n
That’s why mental health should always be part of regular health check-ups. Spotting the signs early makes a huge difference. If you or someone close to you notices changes in mood, sleep, motivation, or social interaction, it’s worth speaking up. Early support can stop small struggles from turning into longer-term mental health problems.
\n
Generally speaking, if you have CP, your mental health is just as important as your physical health. Looking after both together gives you the best chance to live well.
\n
Common symptoms of mental health issues \n
The symptoms of mental health issues in people with cerebral palsy (CP) are very similar to those seen in the wider population, but sometimes they can be misattributed to CP itself. For example, fatigue being seen as “just part of CP” rather than a sign of depression.
\n
Here are some common signs to look out for:
\n
Emotional signs \n
\nOngoing feelings of sadness or low mood \nIrritability, frustration, or frequent mood swings \nWithdrawing from friends, family, or hobbies \nFeeling hopeless, guilty, or worthless \n \n
Cognitive and behavioural signs \n
\nTrouble focusing or making decisions \nLoss of interest or motivation in daily routines \nNegative or self-critical thinking \nStruggling with planning or staying organised \n \n
Physical changes \n
\nDisturbed sleep (too little or too much) \nChanges in appetite \nConstant tiredness or reduced energy \nPain feeling worse or harder to manage \n \n
Social and daily life changes \n
\nAvoiding social contact and becoming isolated \nSkipping school, work, or therapy sessions \nRelying more on others for self-care \nFinding it difficult to maintain relationships \n \n
Young people with CP are especially vulnerable \n
The transition from adolescence to adulthood can be stressful for anyone. For young people with cerebral palsy (CP), this stage often brings extra hurdles—transitioning to adult healthcare, pursuing further education or training, finding work, living more independently, and building adult social and romantic relationships. It’s also the time when many first experience anxiety or depression.
\n
Motor difficulties and related physical, cognitive, or health complications can make these challenges feel heavier, increasing the strain on mental wellbeing. Research shows that young adults with CP often have lower rates of employment or further education, participate less in social activities, and rely more on their families for support.
\n
During this period, regular follow-up from family members and health professionals is vital to ensure that mental health challenges are recognised early and the right support is provided.
\n
Treatment option for mental health \n
Treatment is often very much the same as it is for the general population, but some adaptation to suit communications, mobility or accessibility may be need.
\n
Talking therapies \n
One of the most common and effective options is talking therapy. This can include cognitive behavioural therapy (CBT), counselling, or psychotherapy. Young people and families may also benefit from family therapy.
\n
Medication \n
Sometimes medication is recommended alongside therapy. Antidepressants or anti-anxiety medicines can help ease symptoms, but your doctor will carefully check for interactions with any medication you already take for CP, such as for spasticity or seizures.
\n
Lifestyle and self-management \n
Day-to-day strategies can also make a real difference. Managing pain, fatigue, and sleep problems often improves mood and wellbeing. Staying active through adapted exercise, physiotherapy, or gentle activity can boost energy levels. Just as importantly, staying socially connected helps reduce feelings of isolation.
\n
Support and adjustments \n
Beyond medical treatments, support services play a key role. Peer support groups can connect you with others who understand what it’s like to live with CP. Therapists should also offer accessible information and communication support, whether that’s Easy Read materials or the use of AAC devices. And in education or work, reasonable adjustments under the Equality Act can reduce stress and support your wellbeing.
\n
The Importance of seeking help early \n
When mental health problems first appear, it can feel tempting to wait and hope they pass on their own. But with cerebral palsy, untreated stress, anxiety, or depression can quickly affect both emotional and physical health. Reaching out early—to your GP or another health professional, or a trusted friend or family member—makes a real difference.
\n
Getting support at the right time can prevent small challenges from becoming bigger ones. It can also help you find practical strategies for coping with pain, fatigue, or social barriers, all of which can impact wellbeing. Remember: asking for help is not a weakness, but an important step towards living well with CP.
\n
","rssSummary":"
Living with cerebral palsy (CP) isn’t only about mobility – it’s also about mental wellbeing. Around 1.6 in every 1,000 births are affected with CP , and with improved care, people live longer, fuller lives. Yet research shows mental health often gets overlooked, despite being just as vital as physical health.
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Aug 27, 2025 Cerebral Palsy and Mental Health
Mental health in cerebral palsy is often overlooked. Spotting signs early can improve wellbeing and quality of life.
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Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","post_body":"Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\nIn this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity \nWhat is fatigue? \nFatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\nMost research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\nWhat are the signs of fatigue? \nSings of fatigue can differ among individuals, but some typical signs include:
\n \nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
","rss_summary":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","rss_body":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
","postBodyRss":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
","postEmailContent":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","postFeaturedImageIfEnabled":"https://2252381.fs1.hubspotusercontent-na1.net/hubfs/2252381/Blog/Featured%20image%20-%20Use%20this/FI_Fatique%20CP.jpg","postListContent":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
","postSummaryRss":"
Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
\n
In this article you can read about: - What is fatigue? - What are the signs of fatigue? - Why does cerebral palsy cause fatigue? - How to manage fatigue? - Fatigue and physical activity\n
What is fatigue? \n
Fatigue associated with cerebral palsy (CP) is often described as an overwhelming sense of exhaustion and decreased capacity for physical and mental work and goes beyond normal tiredness. It’s not just feeling sleepy, it’s a persistent lack of energy, motivation, and focus that is not relieved by rest.
\n
Most research on fatigue includes adults with CP and it is known that fatigue affects up to 60% of adults with CP. Research on children with CP and fatigue is limited, but shows higher self-reported fatigue compared to typically developing children.
\n
What are the signs of fatigue? \n
Sings of fatigue can differ among individuals, but some typical signs include:
\n
\nMuscle aches or cramps \nReduced stamina \nSleepiness or drowsiness \nSlower movements \nIrritability or mood changes \nDifficulty concentrating \n \n
Why does cerebral palsy cause fatigue? \n
Fatigue is a significant challenge not only for individuals with cerebral palsy but also for those with other neurological conditions, such as brain injuries sustained later in life. Research indicates that individuals with cerebral palsy expend three to five times more energy while walking compared to their typically developing peers. Moreover, activities that are automatic for people without cerebral palsy require continuous concentration and energy from those with the condition.
\n
Often fatigue is described in two ways:
\n
\nPrimary fatigue \nSecondary fatigue \n \n
Primary fatigue - is related directly to the neurological condition, and the reason for this is not fully understood. Some explanation can be found in the nervous system having to work hard to send signals from the brain to the body. Several studies also indicate that people with CP use 3-5 times as much energy on walking compared to typically developing peers. Secondary fatigue - is not directly related to the condition, but rather a consequence of living with a neurological condition. Some factors that can contribute to fatigue are:
\n
\nPain \nSpasticity \nPhysical deconditioning \nSleep challenges \nStress \nDepression \nNutrition \nMedication \nOther medical conditions \n \n
Many of these factors are interconnected. An example: If you have high levels of spasticity, this may cause pain. These two factors together may result in problems with falling asleep, staying asleep, or getting the right kind of sleep. This again can affect your mood!
\n
Research has also revealed that people with CP are less physically active compared to typical developing people, and this can lead to the cardiovascular system and muscles being deconditioned. This may influence the individual's ability to carry out everyday activities and result in greater fatigue.
\n
How to manage fatigue? \n
The most widely used method for addressing fatigue in people with cerebral palsy and other neurological conditions is energy management . This approach helps to understand what factors contribute to fatigue by tracing energy levels and identifying what factors most influence fatigue and help the individual to plan rest periods.
\n
First of all, it is useful to track fatigue to identify if there is any pattern. The most effective way to do this is to write down all activities you do daily over a time period and add a fatigue score to each activity. As an example, the score could be 0-5 where 0 is no fatigue and 5 is exhausted. You can also add more scores if you like to be even more detailed. You can define “priority” level for every activity/task with 0-5 where 0 is not important and 5 is essential.
\n
There are several ways to track fatigue, but the most important is to get an overview and understanding of:
\n
\nAre there times a day or during the week where you experience fatigue? \nDoes fatigue appear after specific activities or the day after the activity? \nWhat type of activities energise you, and which ones drain your energy? \n \n
When you have this overview, it is time to prioritize for yourself and find out if there is a different way to do daily activities, organise differently etc:
\n
\nWhat activities should I do? \nShould I ask for more support? \nIs it possible to schedule activities differently? \nCan I schedule breaks? \nDo I have the right equipment available to support me in daily life? \n \n
Fatigue and physical activity \n
You may think that fatigue and physical activity don’t go well together, but that’s not the case! Staying fit and active is one the best way to combat fatigue.
\n
Fatigue is often linked to reduced physical fitness. That’s why it’s important for individuals with CP to focus on developing stamina from an early age. While functional skills are essential, building endurance helps create the capacity to take on a variety of activities—both now and in the future. Good habits formed in childhood can have lasting benefits.
\n
For those with motor impairments, finding suitable activities that also raise the heart rate can be challenging—but not impossible. With creativity and adaptation , meaningful movement is achievable. While solo workouts are great, joining group activities can boost motivation and make exercise more enjoyable.
\n
Having fatigue doesn’t mean you should avoid activity altogether. It’s about finding the right balance between rest and movement and choosing activities that bring you joy and energy.
\n
\n
\n
Resources \n
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Fatigue is a common and invisible symptom for many people living with cerebral palsy. Beyond physical limitations, constant effort to move, think, and engage can lead to overwhelming exhaustion. Understanding fatigue is key to improving quality of life and daily functioning .
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Jun 13, 2025 Cerebral palsy and fatigue: Causes, signs, and strategies
Fatigue is a common but overlooked symptom in cerebral palsy. Learn what causes it and how to manage it for better energy and daily function.